A mother's honest, unvarnished, and touching memoir about the life lessons she learned from a son with autism

For years, school reform efforts targeted either students in regular education or those with special needs, but not both. As a result of the No Child Left Behind legislation (NCLB) and its focus on accountability, administrators established policies that would integrate the needs of students who previously were served under separate frameworks. Using the NCLB structure as a starting point, Stephanie W. Cawthon’s new book Accountability-Based Reforms: The Impact on Deaf and Hard of Hearing Students discusses key assumptions behind accountability reforms. She specifically examines how elements of these reforms affect students who are deaf or hard of hearing, their teachers, and their families.

Cawthon begins by providing a brief introduction to the deaf education context, offering detailed information on student demographics, settings, and academic outcomes for deaf students. She then outlines the evolution of accountability-based education reforms, following with a chapter on content standards, assessment accommodations, accountability as sanctions, and students with disabilities. The remaining chapters in Accountability-Based Reforms closely examine educational professionals, accountability, and students who are deaf or hard of hearing; school choice policies and parents; and deaf education and measures of success. Each chapter presents an overview of an important component of accountability reform, available research, and how it has been implemented in the United States. These chapters also offer recommendations for future action by educators, parents, researchers, and education policymakers.

The Second International Symposium on Cognition, Education, and Deafness in 1989 broadened and deepened the scope of investigation initiated at the first conference held five years earlier. Advances in Cognition, Education, and Deafness provides the results in a single integrated volume. The 39 scholars from 14 nations who attended offered consistent progress from the first symposium and new areas of research, especially in the study of applications in education and the new field of neuro-anatomical dimensions of cognition and deafness.

       This important book has been organized under six major themes: Cognitive Assessment; Language and Cognition; Cognitive Development; Neuroscientific Issues; Cognitive Processes; and Cognitive Intervention Programs. This useful study also features programs designed to facilitate the learning of deaf individuals in cognitive realms, and questions about methodological problems facing researchers in deafness.

       Advances in Cognition, Education, and Deafness also synthesizes this wealth of data with the added value of the objective perspective of a cognitive psychologist not directly involved in the field of deafness. Teachers, students, scholars, and researchers will consider this an indispensable reference for years to come.

Rated Outstanding by the American Association of School Libraries

This is the first book to be written by autistic college students about the challenges they face. Aquamarine Blue 5 details the struggle of these highly sensitive students and shows that there are gifts specific to autistic students that enrich the university system, scholarship, and the world as a whole.

Dawn Prince-Hughes presents an array of writings by students who have been diagnosed with Asperger’s Syndrome or High-Functioning Autism, showing their unique ways of looking at and solving problems. In their own words, they portray how their divergent thinking skills could be put to great use if they were given an opportunity. Many such students never get the chance because the same sensitivity that gives them these insights makes the flicker of fluorescent lights and the sound of chalk on the board unbearable For simple—and easily remedied—reasons, we lose these students, who are as gifted as they are challenged.

Aquamarine Blue 5 is a showcase of the strength and resilient character of individuals with Asperger’s Syndrome. It will be an invaluable resource for those touched by this syndrome, their friends and families, and school administrators.

This study emphasizes the importance of family support for deaf members, particularly through the use of both American Sign Language (ASL) and spoken and/or written English. Research has shown how these factors influence such areas as a child’s development, performance in school, and relationships with brothers and sisters. In this volume, authors Barbara Bodner-Johnson and Beth S. Benedict concentrate on the vital, positive effects of bilingualism and how families that share their experiences with other families can enhance all of their children’s achievement and enrichment.

       Bilingual Deaf and Hearing Families: Narrative Interviews describes the experiences of ten families who have at least one deaf family member. In five of the families, the parents are hearing and they have a deaf child; two of the children in these families have cochlear implants. In three families, both the parents and children are deaf. In one family, the parents are deaf and their daughter is hearing; and in one family, the parents and one child are deaf and they all have cochlear implants, and the deaf child’s twin is hearing.

       The interviews were conducted in the families’ homes using set topics and questions. The family discussions cover a wide range of subjects: cochlear implants, where they live, their thoughts about family relationships, how they participate in the Deaf community, how they arrive at certain decisions, their children’s friendships, and the goals and resiliencies they have as a family.

Contemporary research has identified resilience — the ability to rebound and learn despite obstacles and adversities — as a key element to success in school. Black Deaf Students: A Model for Educational Success searches out ways to develop, reinforce, and alter the factors that encourage resilience in African American deaf and hard of hearing students. To find the individual characteristics and outside influences that foster educational achievement, author Carolyn E. Williamson conducted extensive interviews with nine African American deaf and hard of hearing adults who succeeded in high school and postsecondary programs.

       Until now, the majority of studies of African American deaf and hard of hearing students concentrated upon their underachievement. The only success stories available involved high-achieving African American hearing students. To create an effective model in Black Deaf Students, Williamson focuses on the factors that contributed to her subjects’ successes in postsecondary programs, what they viewed as obstacles and how they overcame them, and their recommendations for facilitating graduation from postsecondary programs. Her work gives “voice” to a group rarely heard in research, which enables readers to view them as a heterogeneous rather than homogeneous group. Their stories provide vital information for parents, school personnel, community stakeholders, and those enrolled in education and mental health preparation programs. In addition, the insights about how these adults succeeded can be useful in facilitating positive outcomes for students who are going into two-year colleges, vocational training, and work settings.

The Rowley family's struggle began when Amy entered kindergarten and culminated five years later in a pivotal decision by the U.S. Supreme Court. In effect, the Court majority concluded that the Individuals with Disabilities Education Act did not mandate equal opportunity for children with disabilities in classes with typical children; a disappointing decision for disability advocates.

The Supreme Court decided that schools were required only to provide enough help for children with disabilities to pass from grade to grade. The Court reversed the lower courts' rulings, which had granted Amy an interpreter, setting a precedent that could affect the quality of education for all individuals with disabilities.

From the time Amy entered kindergarten in Peekskill, New York, her parents battled with school officials to get a sign language interpreter in the classroom. Nancy and Clifford Rowley, also deaf, struggled with officials for their own right to a communications process in which they could fully participate. Stuck in limbo was a bright, inquisitive child, forced to rely on partial lipreading of rapid classroom instruction and interaction, and sound amplifiers that were often broken and always cumbersome.

R.C. Smith chronicles the Rowley family's dealings with school boards, lawyers, teachers, expert consultants, advocates, and supporters, and their staunch determination to get through the exhaustive process of presenting the case time after time to school adjudicative bodies and finally the federal courts. The author also documents his own "coming to awareness" about how the "able" see the "disabled."

Deaf Education in America: Voices of Children from Inclusion Settings provides a detailed examination of the complex issues surrounding the integration of deaf students into the general classroom. Author Janet Cerney begins her comprehensive work by stressing to parents, educators, and policymakers the importance of learning the circumstances in which mainstreaming and inclusion can be successful for deaf students. This process requires stakeholders to identify and evaluate the perceived benefits and risks before making placement and implementation decisions. The influences of the quality of communication and the relationships built by and with the students are of paramount importance in leading to success.

In conjunction with these principles, this thorough study examines the theory and history behind inclusion, including the effects of the No Child Left Behind education act. Cerney incorporates this knowledge with interviews of the deaf students themselves as well as with their interpreters and teachers. To ensure complete candidness, the students were surveyed in their homes, and the interpreters and educators were questioned separately. Through these exchanges, Cerney could determine what worked well for the deaf students, what barriers interfered with their access to communication, and what support structures were needed to eliminate those barriers. As a result, Deaf Education in America offers concrete information on steps that can be taken to ensure success in an inclusion setting, results that reverberate through the voices of the deaf students.

Epistemology is the study of how “knowledge” is formed. Standard epistemology isolates the “known” from the “knowers,” thereby defining “knowledge” as objectively constant. Multiple epistemologies suggest that individuals learn in different ways shaped by life factors such as education, family, ethnicity, history, and regional beliefs. In this groundbreaking volume, editors Peter V. Paul and Donald F. Moores call on ten other noted scholars and researchers to join them in examining the many ways that deaf people see and acquire deaf knowledge.

       This collection considers three major groups of deaf knowledge perspectives: sociological and anthropological, historical/psychological and literary, and educational and philosophical. The first explores the adoption of a naturalized, critical epistemological stance in evaluating research; the epistemology of a positive deaf identity; how personal epistemologies can help form deaf education policies; and valuing deaf indigenous knowledge in research. The next part considers dueling epistemologies in educating deaf learners; reforms in deaf education; the role of deaf children of hearing parents in creating Deaf epistemologies; and the benefit of reading literature with deaf characters for all students. The final part explores the application of the Qualitative-Similarity Hypothesis to deaf students’ acquisition of knowledge; a metaparadigm for literacy instruction in bilingual-bicultural education; collaborative knowledge-building to access academia; and examination of the benefits and disadvantages of being deaf.

Traditionally, deaf education has been treated as the domain of special educators who strive to overcome the difficulties associated with hearing loss. Recently, the sociocultural view of deafness has prompted research and academic study of Deaf culture, sign language linguistics, and bilingual education. Linda Komesaroff exposes the power of the entrenched dominant groups and their influence on the politics of educational policy and practice in Disabling Pedagogy: Power, Politics, and Deaf Education.

Komesaroff suggests a reconstruction of deaf education based on educational and social theory. First, she establishes a deep and situated account of deaf education in Australia through interviews with teachers, Deaf leaders, parents, and other stakeholders. Komesaroff then documents a shift to bilingual education by one school community as part of her ethnographic study of language practices in deaf education. She also reports on the experiences of deaf students in teacher education. Her study provides an analytical account of legal cases and discrimination suits brought by deaf parents for lack of access to native sign language in the classroom. Komesaroff confronts the issue of cochlear implantation, locating it within the broader context of gene technology and bioethics, and advocates linguistic rights and self-determination for deaf people on the international level. Disabling Pedagogy concludes with a realistic assessment of the political challenge and the potential of the “Deaf Resurgence” movement to enfranchise deaf people in the politics of their own education.

The 19th International Congress on Education of the Deaf (ICED) in 2000, held in Sydney, Australia, brought together 1,067 teachers, administrators and researchers from 46 countries to address an extremely wide selection of topics. Experts from around the world discussed inclusion of deaf students in regular educational environments, literacy, audiology, auditory development and listening programs, hearing aids, programming for children with cochlear implants, signed communication in education, bilingual education, early intervention (including the rapidly emerging area of newborn hearing screening), education in developing countries, deaf students with multiple disabilities, and deaf students in post-secondary school education.

     The 19 chapters of Educating Deaf Students: Global Perspectives present a select cross-section of the issues addressed at the 19th ICED. Divided into four distinct parts – Contemporary Issues for all Learners, The Early Years, The School Years, and Contemporary Issues in Postsecondary Education – the themes considered here span the entire student age range. Authored by 27 different researchers and practitioners from six different countries, this book can be seen as a valuable description of the zeitgeist in the field of education of the deaf at the turn of the 21st century and the millennium.

The education of deaf or hard of hearing children has become as complex as the varying needs of each individual child. Teachers face classrooms filled with students who are culturally Deaf, hard of hearing, or post-lingually deaf; they might use American Sign Language, cochlear implants, hearing aids/FM systems, speech, Signed English, sign-supported speech, contact signing, nonverbal communication, or some combination of methods. Educators who decide what tools are best for these children are making far-reaching ethical decisions in each case. This collection features ten chapters that work as constructive conversations to make the diverse needs of these deaf students the primary focus.

     The initial essays establish fundamental points of ethical decision-making and emphasize that every situation should be examined not with regard for what is “right or wrong,” but for what is “useful.” Absolute objectivity is unattainable due to social influences, while “common knowledge” is ruled out in favor of “common awareness.” Other chapters deal with the reality of interpreting through the professional’s eyes, of how they are assessed, participate, and are valued in the total educational process, including mainstream environments. The various settings of education for deaf children are profiled, from residential schools to life in three cultures for deaf Latino students, to self-contained high school programs. Ethical Considerations in Educating Deaf Children Who Are Deaf or Hard of Hearing offers an invaluable set of guidelines for administrators and educators of children with hearing loss in virtually every environment in a postmodern world.

“Expecting Teryk is a rich and sumptuous work that speaks to the deeper realities and represents a unique viewpoint of experiences shared by all individuals who choose the path to parenthood.”—Disability, Pregnancy, and Parenthood

The period just prior to the birth of a child is a time of profound personal transformation for expectant parents. Expecting Teryk: An Exceptional Path to Parenthood is an intimate exploration, written in the form of a letter from a parent to her future son, that reclaims a rite of passage that modern society would strip of its magic.

Dawn Prince-Hughes, renowned author of Songs of the Gorilla Nation: My Journey through Autism, considers the ways being autistic might inform her parenting. She also candidly narrates her experience of becoming a parent as part of a lesbian couple—from meeting her partner to the questions they ask about their readiness to become parents and the practical considerations of choosing a sperm donor.

Expecting Teryk is viewed through the lens of autism as Prince-Hughes shares the unique way she sees and experiences the world—as well as her aching will to be fully present for her son. Contemplating the evolutionary traditions of parenting from both animal and human perspectives and the reassurances that nature offers, Expecting Teryk is a work of sensuous wonder that speaks to the deeper realities and archetypal experiences shared by all who embark on the journey of parenthood.

Since Margret A. Winzer wrote her landmark work The History of Special Education, much has transpired in this field, which she again has captured in a remarkable display of scholarship. Winzer’s new study From Integration to Inclusion: A History of Special Education in the 20th Century focuses chiefly on the significant events of the twentieth and early twenty-first centuries in the United States and Canada. Its key dynamics consist of a retrospective overview of the paradigms that emerged from and shaped special education; a critical assessment of past progress and reform, including failures and disappointments; and an analysis of the theoretical diversity within the discipline.

     In this stand-alone volume, Winzer juxtaposes the historical study of disability and of special schooling and service provision with reference to broader social systems, protocols, and practices. She documents how prevailing emotional and intellectual climates influence disability and schooling, and also takes into account the social, political, and ideological factors that affect educational theory and practice. Winzer recognizes that reform has been the Zeitgeist of the history of special education. Crucial problems such as defining exceptional conditions and separating them from one another were formulated in contexts organized along moral, theological, legislative, medical, and social dimensions. Many of these reforms failed for various reasons, which Winzer thoroughly explains in her study. Most of these reforms evolved from the long and honorable pedigree that the field of special education has possessed since its earliest antecedents, now admirably brought up to date by this outstanding work.

Margret A. Winzer and Kas Mazurek combine two disciplines in this collection, comparative and international studies and special education, to explore the ways that diverse nations respond to persons who are exceptional. Their learned contributors also explore the changing parameters of special education, employing comparative studies theories and methods to document, explore, discuss, and analyze social and educational inclusion.

International Practices in Special Education: Debates and Challenges travels the world to examine the progress of special education, from inclusive reform in Canada, “education for all” in the United Kingdom, the reform-restructure-renew movement in Poland to the journey from awareness to action in the United States. Chapters describe the challenges and opportunities in the United Arab Emirates; conflicts regarding educational welfare in South Korea; new perspectives on special needs and inclusive education in Japan; facing inclusion in India; making the invisibles visible in Pakistan; problems and prospects in Nigeria; special needs education in Ethiopia; and the developments, prospects, and demands of special education in a rising China. “One step forward, two steps backward” describes Israel’s special education issues. Germany’s special education receives an international perspective; and education policy and pedagogy for students with disabilities in Australia, completes the analyses in this remarkable, comprehensive work of scholarship.

The 21st International Congress on the Education of the Deaf (ICED) witnessed revolutionary exchanges on the vital themes in education. Presenters addressed topics encompassing seven major strands: Educational Environments, Language and Literacy, Early Intervention, Unique Challenges in Developing Countries, Educating Learners with Diverse Needs, Technology in Education, and Sign Language and Deaf Culture. These presentations and ensuing dialogues raised many complex questions. Partners in Education: Issues and Trends from the 21st International Congress on the Education of the Deaf features all of the keynote addresses by renowned luminaries in deaf education: Breda Carty, Karen Ewing, Nassozi Kiyaga, John Luckner, Connie Mayer and Beverly Trezek, volume editor Donald F. Moores, Peter V. Paul, Antti Raike, Claudine Storbeck, James Tucker, and Alys Young.

Most critically, the contributors to this collection explore the many multifaceted challenges facing the world’s deaf students. Deaf children are being diagnosed with overlays of disabilities; more deaf children are growing up in poverty; and many deaf children represent minority racial/ethnic groups or are immigrants to their country of residence. The situation for deaf individuals in the most impoverished countries of the world is desperate and of crisis proportions. This volume brings these themes to light through its exceptional synthesis of the outstanding discourse that took place at ICED 2010, including abstracts from 30 celebrated conference presentations.

In nineteenth-century Spain, the education of deaf students took shape through various contradictory philosophies and practices. Susan Plann depicts this ambivalence by profiling a select group of teachers and students in her detailed history The Spanish National Deaf School: Portraits from the Nineteenth Century.

Plann’s subjects reveal the political, financial, and identity issues that dominated the operation of the National School for Deaf-Mutes and the Blind in Madrid from 1805 to1899. Roberto Francisco Prádez y Gautier, the first deaf teacher in Spain, taught art from 1805–36; he also was the last deaf teacher for the next 50 years. Juan Manuel Ballesteros, the hearing director from 1835 to1868, enacted an “ableist” policy that barred deaf professors. At the same time, another hearing teacher, Francisco Fernández Villabrille, wrote the first Spanish Sign Language dictionary. In the 1870s, two deaf students, Manuel Tinoco and Patricio García, resisted the physical abuse they received and set the stage for the growth of a Deaf identity that opposed the deprecating medical model of deafness. Marcelina Ruiz Ricote y Fernández a hearing female teacher who taught from 1869 to 1897, combated the school’s sexist polices. The Spanish National Deaf School concludes with Martín de Martín y Ruiz, the most famous deaf-blind student from the Madrid school. Through these portraits, Plann has brought life to the major issues that defined education in nineteenth-century Spain, themes that have influenced the status of deaf Spaniards today.

Despite the idealism represented by the No Child Left Behind law’s mandate for accountability in education, deaf students historically and on average have performed far below grade level on standardized tests. To resolve this contradiction in deaf education, this collection presents a spectrum of perspectives from a diverse corps of education experts to suggest a constructive synthesis of worthy ideals, hard realities, and pragmatic solutions. Contributors to this study include volume editors Robert C. Johnson and Ross E. Mitchell, Ed Bosso, Michael Bello, Betsy J. Case, Patrick Costello, Stephanie W. Cawthon, Joseph E. Fischgrund, Courtney Foster, Christopher Johnstone, Michael Jones, Jana Lollis, Pat Moore, Barbara Raimondo, Suzanne Recane, Richard C. Steffan, Jr., Sandra J. Thompson, Martha L. Thurlow, and Elizabeth Towles-Reeves.

These noted educators and researchers employ experiences from Massachusetts, Delaware, Maryland, North Carolina, Illinois and California to support their findings about the dilemma facing deaf students and their teachers. They assess the intent and flexibility of federal law; achievement data regarding deaf students; potential accommodations and universal design to make tests more accessible; possible alternatives for deaf student not ready for conventional assessments; accounts of varying degrees of cooperation and conflict between schools and state education departments; and the day-to-day efforts of teachers and school administrators to help deaf students measure up to the new standards. By presenting these wide-ranging insights together, Testing Deaf Students in an Age of Accountability provides a unique opportunity to create genuine means to educate deaf students for the only test that matters, that of life.