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Books near "Hearing Happiness: Deafness Cures in History", Library of Congress RF291.V57
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The Lightning Stick: Arrows, Wounds, And Indian Legends
H. Henrietta Stockel
University of Nevada Press, 1995
Library of Congress RD201.S76 1995 | Dewey Decimal 617.143

More than simply a history of the bow and arrow, The Lightening Stick brings together a broad range of significant people and events, spiritual usages, medicinal treatments, and an unusual array of subject matter related to the weapon itself. Henrietta Stockel conveys a host of information derived from primary documents and provides readers with a fascinating book. Her descriptive storytelling—serious, humorous, and even gory at times—takes the reader from modern uses of bows and arrows (including a previously little-known incident in the atomic city of Los Alamos, New Mexico) to an early era of western history, before guns changed the frontier forever.

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Face/On: Face Transplants and the Ethics of the Other
Sharrona Pearl
University of Chicago Press, 2017
Library of Congress RD523.P39 2017 | Dewey Decimal 617.520592

Are our identities attached to our faces? If so, what happens when the face connected to the self is gone forever—or replaced? In Face/On, Sharrona Pearl investigates the stakes for changing the face–and the changing stakes for the face—in both contemporary society and the sciences.
 
The first comprehensive cultural study of face transplant surgery, Face/On reveals our true relationships to faces and facelessness, explains the significance we place on facial manipulation, and decodes how we understand loss, reconstruction, and transplantation of the face. To achieve this, Pearl draws on a vast array of sources: bioethical and medical reports, newspaper and television coverage, performances by pop culture icons, hospital records, personal interviews, films, and military files. She argues that we are on the cusp of a new ethics, in an opportune moment for reframing essentialist ideas about appearance in favor of a more expansive form of interpersonal interaction. Accessibly written and respectfully illustrated, Face/On offers a new perspective on face transplant surgery as a way to consider the self and its representation as constantly present and evolving. Highly interdisciplinary, this study will appeal to anyone wishing to know more about critical interventions into recent medicine, makeover culture, and the beauty industry.
 
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Cleavage: Technology, Controversy, and the Ironies of the Man-Made Breast
Jacobson, Nora
Rutgers University Press, 1999
Library of Congress RD539.8.J33 2000 | Dewey Decimal 618.190592

Women's breasts have been idealized as symbols of femininity and motherhood. They have held great social and psychological significance as objects drawing intrusive gazes, and as images of self worth to be measured against an idealized form. It is no wonder, then, that a technology emerged to alter and "enhance" their appearance. Nora Jacobson traces the hundred-year history of one such technology: breast implants.

Organized both chronologically and thematically, this book examines the history of breast implant technology from 1895 to 1990, including the controversies that erupted in the early 1990s over the safety of the devices and the Food and Drug Administration's regulation of their use. Jacobson examines such topics as politics and bias in medical practice and the role of bureaucracies, corporations, and governments in establishing policy and regulating implant technology.
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Silicone Survivors: Women's Experiences with Breast Implants
Susan Zimmermann
Temple University Press, 1998
Library of Congress RD539.8.Z56 1998 | Dewey Decimal 618.190592

Susan Zimmermann talked with forty women about perhaps one of the most sensitive issues of body image and health - their breasts, the chief attribute of femininity. In the aftermath of the early 1990s controversy over the use of silicone breast implants, how do women decide to undergo surgery o enhance or reconstruct their bodies? How does surgery alter a woman's self-image? How did they face the possibility of debilitating autoimmune disease from rupturing or leaking implants?

Some opted for breast implants after mastectomies, others for cosmetic reasons. Some felt empowered by the surgery: "Being a woman, I just like breasts and felt like I got ripped off. ... I did it for myself." Others were pressured by their husbands: "He used to make fun of parts of my body. .... And, he made me believe that if I was ever to leave him, no one would have anything to do with me because I was this deformed type of person."

After surgery, some women were ecstatic, while others had a sense of inner conflict about what they had done to themselves: were they "faking it"? And a few were angry: "I was really angry inside that I had  had to put plastic bags filled with chemicals in my body in order for me to feel like I could do the Hoochie Koo on Saturday nights. ... I didn't wear tight clothes; I didn't want my children to find out."

Now, having faced years of medical and personal uncertainty, many have coped by reassessing their lives and their relationships, by sharing information and support with other women with implants, outreach that became a means for self-empowerment.
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Obesity Surgery: Stories Of Altered Lives
Marta Meana
University of Nevada Press, 2008
Library of Congress RD540.M432 2008 | Dewey Decimal 617.43

Obesity is a major national health problem, and science has been developing a number of ways to address it. The most revolutionary is surgical intervention to alter the gastrointestinal system so that less food/nutrients can be consumed and/or absorbed. People who undergo this surgery usually experience drastic weight loss and dramatic health improvements. They also discover a new sense of self and face challenges often unimaginable when they were obese.
Using in-depth, first person accounts of 33 men and women who underwent weight-loss surgery, this book elaborates on the complexities of finally getting what you wished for— the good, the bad, and the totally unexpected.
We live in a culture fascinated by physical make-overs, but no one talks about their psychological consequences. Losing a lot of weight is perhaps the most extreme make-over of all. It leaves people emotionally changed, and these changes are the heart of this book.The fascinating narratives contain important lessons for individuals considering or having had the surgery and for those who try to help them. It is simply a story of how finally getting what you’ve always wished for can be much more complicated affair than you ever imagined.
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Obesity Surgery: Stories Of Altered Lives
Marta Meana
University of Nevada Press, 2008
Library of Congress RD540.M432 2008 | Dewey Decimal 617.43

Obesity is a major national health problem, and science has been developing a number of ways to address it. The most revolutionary is surgical intervention to alter the gastrointestinal system so that less food/nutrients can be consumed and/or absorbed. People who undergo this surgery usually experience drastic weight loss and dramatic health improvements. They also discover a new sense of self and face challenges often unimaginable when they were obese.
Using in-depth, first person accounts of 33 men and women who underwent weight-loss surgery, this book elaborates on the complexities of finally getting what you wished for— the good, the bad, and the totally unexpected.
We live in a culture fascinated by physical make-overs, but no one talks about their psychological consequences. Losing a lot of weight is perhaps the most extreme make-over of all. It leaves people emotionally changed, and these changes are the heart of this book.The fascinating narratives contain important lessons for individuals considering or having had the surgery and for those who try to help them. It is simply a story of how finally getting what you’ve always wished for can be much more complicated affair than you ever imagined.
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Domesticating Organ Transplant: Familial Sacrifice and National Aspiration in Mexico
Megan Crowley-Matoka
Duke University Press, 2016
Library of Congress RD575.C77 2016

Organ transplant in Mexico is overwhelmingly a family matter, utterly dependent on kidneys from living relatives—not from stranger donors typical elsewhere. Yet Mexican transplant is also a public affair that is proudly performed primarily in state-run hospitals. In Domesticating Organ Transplant, Megan Crowley-Matoka examines the intimate dynamics and complex politics of kidney transplant, drawing on extensive fieldwork with patients, families, medical professionals, and government and religious leaders in Guadalajara. Weaving together haunting stories and sometimes surprising statistics culled from hundreds of transplant cases, she offers nuanced insight into the way iconic notions about mothers, miracles, and mestizos shape how some lives are saved and others are risked through transplantation. Crowley-Matoka argues that as familial donors render transplant culturally familiar, this fraught form of medicine is deeply enabled in Mexico by its domestication as both private matter of home and proud product of the nation. Analyzing the everyday effects of transplant’s own iconic power as an intervention that exemplifies medicine’s death-defying promise and commodifying perils, Crowley-Matoka illuminates how embodied experience, clinical practice, and national identity produce one another.
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New Organs Within Us: Transplants and the Moral Economy
Asl1han Sanal
Duke University Press, 2011
Library of Congress RD575.S263 2011 | Dewey Decimal 617.461059209561

New Organs Within Us is a richly detailed and conceptually innovative ethnographic analysis of organ transplantation in Turkey. Drawing on the moving stories of kidney-transplant patients and physicians in Istanbul, Aslihan Sanal examines how imported biotechnologies are made meaningful and acceptable not only to patients and doctors, but also to the patients’ families and Turkish society more broadly. She argues that the psychological theory of object relations and the Turkish concept of benimseme—the process of accepting something foreign by making it one’s own—help to explain both the rituals that physicians perform to make organ transplantation viable in Turkey and the psychic transformations experienced by patients who suffer renal failure and undergo dialysis and organ transplantation. Soon after beginning dialysis, patients are told that transplantable kidneys are in short supply; they should look for an organ donor. Poorer patients add their names to the state-run organ share lists. Wealthier patients pay for organs and surgeries, often in foreign countries such as India, Russia, or Iraq. Sanal links Turkey’s expanding trade in illegal organs to patients’ desires to be free from dialysis machines, physicians’ qualms about declaring brain-death, and media-hyped rumors of a criminal organ mafia, as well as to the country’s political instability, the privatization of its hospitals, and its position as a hub in the global market for organs.
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American Lobotomy: A Rhetorical History
Jenell Johnson
University of Michigan Press, 2014
Library of Congress RD594 | Dewey Decimal 617.481

American Lobotomy studies a wide variety of representations of lobotomy to offer a rhetorical history of one of the most infamous procedures in the history of medicine. The development of lobotomy in 1935 was heralded as a “miracle cure” that would empty the nation’s perennially blighted asylums. However, only twenty years later, lobotomists initially praised for their “therapeutic courage” were condemned for their barbarity, an image that has only soured in subsequent decades.  Johnson employs previously abandoned texts like science fiction, horror film, political polemics, and conspiracy theory to show how lobotomy’s entanglement with social and political narratives contributed to a powerful image of the operation that persists to this day. The book provocatively challenges the history of medicine, arguing that rhetorical history is crucial to understanding medical history. It offers a case study of how medicine accumulates meaning as it circulates in public culture and argues for the need to understand biomedicine as a culturally situated practice.

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The Man with a Shattered World: The History of a Brain Wound
A. R. Luria
Harvard University Press, 1987
Library of Congress RD594.Z38L8713 1987 | Dewey Decimal 617.4810440924

Russian psychologist A. R. Luria presents a compelling portrait of a man’s heroic struggle to regain his mental faculties. A soldier named Zasetsky, wounded in the head at the battle of Smolensk in 1943, suddenly found himself in a frightening world: he could recall his childhood but not his recent past; half his field of vision had been destroyed; he had great difficulty speaking, reading, and writing.

Much of the book consists of excerpts from Zasetsky’s own diaries. Laboriously, he records his memories in order to reestablish his past and to affirm his existence as an intelligent being. Luria’s comments and interpolations provide a valuable distillation of the theory and techniques that guided all of his research. His “digressions” are excellent brief introductions to the topic of brain structure and its relation to higher mental functions.

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Spinal Cord Injury and the Family: A New Guide
Michelle J. Alpert M.D.
Harvard University Press, 2008
Library of Congress RD594.3.A47 2008 | Dewey Decimal 617.482044

Spinal cord injury, or SCI, is frequently sudden and unexpected—through accident, disease, or violence, patients temporarily lose control of their bodies and, it seems, their lives. With rehabilitation, they can learn to navigate their world once more, retraining muscles and mind to compensate for paralyzed limbs and diminished strength. But as Dr. Michelle Alpert shows here, there is far more to recapturing full, independent lives than regaining movement. Central to long-term success is mending the family unit.

Combining Dr. Alpert’s clinical experience with patients’ own stories, Spinal Cord Injury and the Family is for individuals and their families who must climb back from injury: for the young quad couple, both quadriplegic, who wish to conceive and raise a child; for the paraplegic dad who wants to teach his daughter to drive; for the couple wondering how they can regain the sexual spark in their relationship.

The authors cover the causes of and prognosis for SCI through case studies, review common courses of rehabilitation, and answer the “what now?” questions—from daily routines to larger issues concerning sex, education and employment, childbearing, and parenting with SCI. Rich in clinical information and practical advice, the book shows how real patients and their families are living full lives after spinal cord injury.

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Deep: Real Life with Spinal Cord Injury
Marcy Epstein and Travar Pettway, Editors
University of Michigan Press, 2007
Library of Congress RD594.3.D44 2006 | Dewey Decimal 617.482

"This project fits into the larger picture of excellence that we wish to accomplish in all dimensions of our health system: groundbreaking and dedicated research, compassionate clinical care, progressive education, and a welcoming environment that includes community with people with disabilities. In Deep, the writers and editors of this book realize this mission with accuracy and clarity."
---Denise G. Tate, Director of Research at the University of Michigan Model Spinal Cord Injury Care System

People with spinal cord injuries experience life beyond their medical and rehabilitative journeys, but these stories are rarely told. Deep: Real Life with Spinal Cord Injury includes the stories of ten men and women whose lives have been transformed by spinal cord injury. Each essay challenges the stereotypes and misconceptions about SCI---with topics ranging from faith to humility to sex and manhood---offering a multitude of voices that weave together to create a better understanding of the diversity of disability and the uniqueness of those individuals whose lives are changed but not defined by their injuries. Life with SCI can be traumatic and ecstatic, uncharted and thrilling, but it always entails a journey beyond previous expectations. This volume captures this sea change, exploring the profound depths of SCI experience.

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A User’s Guide to Bypass Surgery
Ted Klein
Ohio University Press, 1996
Library of Congress RD598.35.C67K54 1996 | Dewey Decimal 617.412

Thirty Rooms to Hide In: Insanity, Addiction, and Rock ‘n’ Roll in the Shadow of the Mayo Clinic
Luke Longstreet Sullivan
University of Minnesota Press, 2014
Library of Congress RD727.S85 2012 | Dewey Decimal 362.292092

Author Luke Longstreet Sullivan has a simple way of describing his new memoir: “It’s like The Shining . . . only funnier.” Thirty Rooms to HideIn tells the astonishing story of Sullivan’s father and his descent from one of the world’s top orthopedic surgeons at the Mayo Clinic to a man who is increasingly abusive, alcoholic, and insane, ultimately dying alone on the floor of a Georgia motel room. For his wife and six sons, the years prior to his death were characterized by turmoil, anger, and family dysfunction; but somehow they were also a time of real happiness for Sullivan and his brothers, full of dark humor and much laughter.

Through the 1950s and 1960s, the six brothers had a wildly fun and thoroughly dysfunctional childhood living in a forbidding thirty-room mansion, known as the Millstone, on the outskirts of Rochester, Minnesota. The many rooms of the immense home, as well as their mother’s loving protection, allowed the Sullivan brothers to grow up as normal, mischievous boys. Against a backdrop of the times—the Cold War, the Cuban Missile Crisis, fallout shelters, JFK’s assassination, and the Beatles—the cracks in their home life and their father’s psyche continue to widen. When their mother decides to leave the Millstone and move the family across town, the Sullivan boys are able to find solace in each other and in rock ’n’ roll.

As Thirty Rooms to HideIn follows the story of the Sullivan family—at times grim, at others poignant—a wonderful, dark humor lifts the narrative. Tragic, funny, and powerfully evocative of the 1950s and 1960s, Thirty Rooms to Hide In is a tale of public success and private dysfunction, personal and familial resilience, and the strange power of humor to give refuge when it is needed most, even if it can’t always provide the answers.

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The Man Behind the Mask: Journey of an Orthopaedic Surgeon
Thomas H. Mallory, M.D.
University of Missouri Press, 2007
Library of Congress RD728.M35A3 2007 | Dewey Decimal 617.47092

  The perils of aging are many, but the debilitating effects of serious illness loom large. In this stirring memoir, readers will discover a man who improved the lives of many arthritis sufferers before himself succumbing to a cruel debilitating disease. The Man behind the Mask tells the story of Thomas Mallory, who was inspired to become a doctor after undergoing surgery for a high school football injury. He went on to become a renowned surgeon and a pioneer in joint replacement. In 2002, his successful career came to an abrupt halt when he was diagnosed with Parkinson’s disease.

            Mallory was one of the first surgeons in the United States to see the potential for joint replacement technology, and in this memoir he describes not only the nuances of introducing hip replacement surgery but also the systems that he established to make it a highly successful operation. He tells how he overcame initial resistance to the procedure and became a respected teacher of the technology, training many surgeons who went on to successful careers, lecturing about his procedure around the world, and also seeing VIP patients who journeyed to Ohio just to be operated on by him.

            As a pioneer in this type of operation, Mallory first recognized the value of using prosthetic innovation and development. He became a proponent of modularity in joint replacement surgery, which allowed a surgeon to customize a prosthesis to a patient’s joint in the operating room. His innovations, along with those of Dr. William Head, resulted in the introduction in 1983 of the Mallory-Head Hip System—a technology still in use today and one that has offered relief to thousands of patients.

            Tracing the joys and sorrows of his own career, Mallory dispels the myth that surgeons are emotionally invulnerable and cold. He offers his perspective on the pursuit of medicine as a profession, on the doctor-patient relationship, and on litigious challenges to physicians. He also commends the benefits of family and leisure and the blessing of life in general while offering insight into the management of an incurable disease.

            In our skeptical era, Thomas Mallory is a shining example of a prominent scientist who has maintained his faith in God throughout the highs and lows of life. The Man behind the Mask is an inspiring account for fellow professionals and general readers, as well as for those who have benefited from the procedures he introduced.

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Mechatronic Hands: Prosthetic and robotic design
Paul H. Chappell
The Institution of Engineering and Technology, 2016
Library of Congress RD756.22.C43 2016 | Dewey Decimal 629.892

This book describes the technical design characteristics of the main components that go into forming an artificial hand, whether it is a simple design that does not have a natural appearance, or a more complicated design where there are multiple movements of the fingers and thumb. Mechanical components obviously form the structure of any hand, while there are some lesser known ideas that need to be explored such as how to process a slip signal.
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The Wounds That Bind Us
Kelley Shinn
West Virginia University Press, 2023
Library of Congress RD796.S55A3 2023

The improbable and powerful true story of a single mother with prosthetics for both legs who travels the globe with her young daughter in a Land Rover.

The Wounds That Bind Us is the improbable true story of Kelley Shinn, an orphan at birth who loses her legs at the age of sixteen to a rare bacterial pathogen. She becomes an avid off-road racer and, as a single mother, attempts to drive around the globe in a Land Rover with her three-year-old daughter in tow to bring light to the plight of land mine survivors. With unflinching honesty, exceptional lyricism, and biting humor, Shinn (“that’s two Ns and no shins”) takes readers on a wild journey—literal and emotional—filled with striking characters and landscapes, heartbreaks, and hard-won insights, ultimately arriving at a place of profound redemption.

Told with the energy and intensity of the adventure story it is, this terrifically rich and nuanced examination of a life is also a careful meditation on renewal—a remapping of the world. Guided by the narrator’s keen introspection and her ability to look resolutely at harrowing sorrows and still find hope, joy, and meaning, The Wounds That Bind Us will resonate deeply, long after the last page.

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All about Your Eyes
Sharon Fekrat, M.D., FACS and Jennifer S. Weizer, M.D., eds.
Duke University Press, 2005
Library of Congress RE46.A44 2006 | Dewey Decimal 617.7

A concise, easy-to-understand reference book, All about Your Eyes tells you what you need to know to care for your eyes and what to expect from your eye doctor.

In this reliable guide, leading eye care experts:
—explain how healthy eyes work
—describe various eye diseases, including pink eye, cataract, glaucoma, age-related macular degeneration, and diabetic retinopathy
—provide up-to-date information on eye surgery, including refractive, laser, and cosmetic

For each eye problem, the authors describe in simple, straightforward language
—what it is
—the symptoms
—what, if anything, you can do to prevent it
—when to call the doctor
—the treatment
—the likelihood of recovery

All about Your Eyes includes a glossary of technical terms and, following each entry, links to web sites where further information may be found.

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All about Your Eyes, Second Edition, revised and updated
Sharon Fekrat, Tanya S. Glaser, and Henry L. Feng, editors
Duke University Press, 2021
Library of Congress RE46.A44 2021

A concise, easy-to-understand reference book, the revised and updated second edition of All about Your Eyes tells you what you need to know to care for your eyes and what to expect from your eye doctor. In this reliable guide, leading eye care experts:
* explain eye anatomy and how healthy eyes work
* describe various eye diseases, including pink eye, cataract, glaucoma, age-related macular degeneration, and diabetic retinopathy
* provide up-to-date information on surgery
For each eye problem, the authors describe in simple, straightforward language:
* what it is
* the symptoms
* what, if anything, you can do to prevent it
* when to call the doctor
* diagnostic tests and treatment
* the likelihood of recovery
All about Your Eyes includes a glossary of technical terms and, following each entry, links to websites where further information may be found.

Contributors. Natalie A. Afshari, MD, Rosanna P. Bahadur, MD, Paramjit K. Bhullar, MD, Faith A. Birnbaum, MD, Cassandra C. Brooks, MD, Pratap Challa, MD, Melissa Mei-Hsia Chan, MBBS, Ravi Chandrashekhar, MD, MSEE, Nathan Cheung, OD, FAAO Claudia S. Cohen, MD, Vincent A. Deramo, MD, Cathy DiBernardo, RN, Laura B. Enyedi, MD, Sharon Fekrat, MD, Henry L. Feng, MD, Brenton D. Finklea, MD, Anna Ginter, MD, Tanya S. Glaser, MD, Michelle Sy Go, MD, MS, Mark Goerlitz-Jessen, MD, Herb Greenman, MD, Abhilash Guduru, MD, Preeya Gupta, MD, Renee Halberg, MSW, LCSW, S. Tammy Hsu, MD, Alessandro Iannaccone, MD, MS, FARVO, Charlene L. James, OD, Kim Jiramongkolchai, MD, Michael P. Kelly, FOPS, Muge R. Kesen, MD, Kirin Khan, MD, Wajiha Jurdi Kheir, MD, Jane S. Kim, MD, Jennifer Lira, MD, Katy C. Liu, MD, PhD, Ramiro S. Maldonado, MD, Ankur Mehra, MD, Priyatham S. Mettu, MD, Prithvi Mruthyunjaya, MD, MHS, Nisha Mukherjee, MD, Kenneth Neufeld, MD, Kristen Peterson, MD, James H. Powers, MD, S. Grace Prakalapakorn, MD, MPH, Michael Quist, MD, Leon Rafailov, MD, Roshni Ranjit-Reeves, MD, Nikolas Raufi, MD, William Raynor, BS, Cason Robbins, BS, Ananth Sastry, MD, Dianna L. Seldomridge, MD, MBA, Terry Semchyshyn, MD, Ann Shue, MD, Julia Song, MD, Brian Stagg, MD, Christopher Sun, MBBS, Anthony Therattil, BS, Daniel S.W. Ting, MBBS, Fay Jobe Tripp, MS, OTR/L, CLVT, CDRS, Obinna Umunakwe, MD, PhD, Lejla Vajzovic, MD, Susan M. Wakil, MD, C. Ellis Wisely, MD, MBA, Julie A. Woodward, MD
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The Wonderful Art of the Eye: A Critical Edition of the Middle English Translation of his De Probatissimo Arte Oculorum
L. M. Eldredge
Michigan State University Press, 1996
Library of Congress RE48.G68513 1996 | Dewey Decimal 617.7

A thirteenth-century treatise on the theory and practice of ophthalmology, this unique work provides a window on what passed for medical knowledge of the eye during the late Middle Ages. Although little is known of the author, Benevenutus Grassus, he seems to have roamed Italy in the early thirteenth century as a medical practitioner specializing in diseases of the eye.

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Sound Sense: Living and Learning with Hearing Loss
Sara Laufer Batinovich
Gallaudet University Press, 2011
Library of Congress RF290.B38 2010 | Dewey Decimal 617.8

One out of every eight people between the ages of 18 and 67 in the United States has a hearing loss, estimated as 12 percent of the working-age population. Sound Sense: Living and Learning with Hearing Loss addresses the acute need of these people to function at the highest level in these income-earning years, the longest phase in their lives. In nine pointed chapters, author Sara Laufer Batinovich, who also has lost her hearing, shares her experience and knowledge in turning every challenge into an opportunity to become one’s best self-advocate.

Batinovich begins in the workplace, advising on winning a job, keeping it, and developing a long-term career, plus how to reduce stress and establish fulfilling professional relationships with colleagues. She offers tips on communication ranging from having sales people face you for easier speechreading to parsing boarding announcements at airports and play-by-play at ballparks. Her practical handbook also provides step-by-step guidance for getting a hearing aid or a cochlear implant and finding one’s way through prickly insurance claim mazes.

Sound Sense features information on finding a service dog, securing legally mandated accommodations for continuing education, tips on exercise and health, and even sensitive suggestions on strengthening personal relationships. Batinovich’s vivacious style and her own anecdotes add an upbeat, genuine sensibility to her book’s value as a positive guide to living with hearing loss.

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Baby Boomers and Hearing Loss: A Guide to Prevention and Care
Burkey, John M
Rutgers University Press, 2006
Library of Congress RF290.B87 2006 | Dewey Decimal 617.800846

In Baby Boomers and Hearing Loss, audiologist John Burkey shows readers how they can continue to enjoy youthful living, regardless of whether their hearing abilities are undiminished or severely compromised. In a reassuring and straightforward style, Burkey explains the typical causes of hearing loss, from genetic factors to years of exposure to loud noises, and demystifies the sometimes confusing results of a hearing test. Fortunately, new technologies and advances in medicine have made it easier to detect signs of initial hearing loss and to prevent it from becoming a serious problem.

For those who have already sustained some damage, the author suggests ways to manage daily activities by using a range of techniques, equipment, and medical procedures. His suggestions include minor changes, such as using a vibrating alarm clock rather than one that is sound-based. More dramatic but often highly effective options, including reconstructive surgery, cochlear implants, and bone-anchored hearing aids, are also described. 

In his previous award-winning book, Overcoming Hearing Aid Fears: The Road to Better Hearing, Burkey addressed common fears, concerns, and misconceptions that people have about choosing and using hearing aids. In this second indispensable volume, he offers a comprehensive guide on how to cope with and prevent hearing impairment. For a generation that refuses to slow down or quietly accept limitations, this book is essential reading.

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Living with Hearing Loss
Marcia B. Dugan
Gallaudet University Press, 2003
Library of Congress RF290.D84 2003 | Dewey Decimal 362.1978

People who are hard of hearing and their friends and relatives now can learn all they need to know about hearing loss in this easy to read guide. Newly updated and revised, Living with Hearing Loss takes the reader from A to Z on the kinds and causes of hearing loss and its common early signs. Written by Marcia B. Dugan, past president of Self Help for Hard of Hearing People (SHHH), this straightforward book provides thorough information on seeking professional evaluations and complete descriptions of hearing aids and other assistive technologies. Enhanced sections on the potential of cochlear implants and dealing with tinnitus distinguishes this very useful handbook. Readers also can take advantage of updated information on relevant Internet sites and a new list of resources on dealing with hearing loss.

       Living with Hearing Loss also suggests strategies for everyday situations and times of emergency. Chapters on speechreading, oral interpreters, assertive communication, and other tips for improving communication can enable people with hearing loss to make changes at work, home, and while traveling to cope with most situations. It can raise significantly the quality of the lives of hard of hearing people while also helping them to avoid dependency upon others.
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Communication Therapy: An Integrated Approach to Aural Rehabilitation
Mary June Moseley
Gallaudet University Press, 1996
Library of Congress RF291.C63 1996 | Dewey Decimal 617.89

This new book for students and professionals emphasizes a functional approach to aural rehabilitation refined during the past several years. It details the use of an integrated therapy strategy designed to meet a variety of needs for each client while simultaneously working on multiple communication skill areas. Particular care has been taken to address the different requirements of deaf and hard of hearing adolescents and adults, including information about the unique needs of the culturally Deaf population. Throughout this practical text, clinicians receive encouragement to learn American Sign Language to enhance communication with Deaf clients.

       Communication Therapy calls upon the expertise of various authorities well-versed in integrated therapy. They explain fully the state-of-the-art practices for all therapy areas, from global areas in communication therapy, to technology for aural rehabilitation, auditory skills, speechreading, speech and voice, pronunciation, and language skills, and telephone communication training. Case studies demonstrate the effectiveness of the integrated approach, making this book a significant advancement in communication therapy.

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Missed Connections
Barbara Stenross
Temple University Press, 1999
Library of Congress RF291.S74 1999 | Dewey Decimal 362.1978092

"Why doesn't she just open up her ears and listen?" Few physical problems are as poorly understood as hearing loss. In Missed Connections, a new kind of  self-help book that combines sociological reporting with personal reflection, sociologist Barbara Stenross examines what hearing loss feels like to those who have it and which technologies and strategies can improve communication at home and in public.

Based on seven  years of research, Stenross's book tells of how -- as she sought information and solutions to help her hard-of-hearing father -- she came  to join a community group called Village Self Help for Hard of Hearing People. Taking us along to group meetings and into the homes of members, Stenross shows us -- through the personal accounts of these individuals -- the exhaustion that comes from constantly straining to listen, the frustration of missing critical comments or the or the punchlines of jokes, and the pain that hard-of-hearing family members experience when loved ones accuse them of hearing "when they want to." Full of scenes, dialogues, and conversations, Missed Connections also discusses such practical issues as how people with impaired hearing can continues to use the phone, how assistive technologies can help in public and private, why hearing aids can't always do enough, and how bluffing and silence can hurt more than help. Understanding that when one family member is hard of hearing, the whole family can suffer from "missed connections," Stenross offers in this book a useful family resource with a broad range of practical guidance.

With chapters on belonging and acceptance, do's and don'ts in public, lip-reading, hearing aids, and television, Missed Connections will interest a range of readers including deaf and hard-of-hearing people -- as well as their families, teachers, friends, employers, and counselors -- healthcare professionals, scholars, and others interested in the experience of and solutions for disability and hearing loss.
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Hearing Happiness: Deafness Cures in History
Jaipreet Virdi
University of Chicago Press, 2020
Library of Congress RF291.V57 2020 | Dewey Decimal 362.42

Weaving together lyrical history and personal memoir, Virdi powerfully examines society’s—and her own—perception of life as a deaf person in America.

At the age of four, Jaipreet Virdi’s world went silent. A severe case of meningitis left her alive but deaf, suddenly treated differently by everyone. Her deafness downplayed by society and doctors, she struggled to “pass” as hearing for most of her life. Countless cures, treatments, and technologies led to dead ends. Never quite deaf enough for the Deaf community or quite hearing enough for the “normal” majority, Virdi was stuck in aural limbo for years. It wasn’t until her thirties, exasperated by problems with new digital hearing aids, that she began to actively assert her deafness and reexamine society’s—and her own—perception of life as a deaf person in America.
 
Through lyrical history and personal memoir, Hearing Happiness raises pivotal questions about deafness in American society and the endless quest for a cure. Taking us from the 1860s up to the present, Virdi combs archives and museums in order to understand the long history of curious cures: ear trumpets, violet ray apparatuses, vibrating massagers, electrotherapy machines, airplane diving, bloodletting, skull hammering, and many more. Hundreds of procedures and products have promised grand miracles but always failed to deliver a universal cure—a harmful legacy that is still present in contemporary biomedicine.

Weaving Virdi’s own experiences together with her exploration into the fascinating history of deafness cures, Hearing Happiness is a powerful story that America needs to hear.
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Missing Words: The Family Handbook on Adult Hearing Loss
Kay Thomsett
Gallaudet University Press, 1993
Library of Congress RF291.35.T48 1993 | Dewey Decimal 617.8

Written by Eve Nickerson, who is deaf, and her daughter Kay Thomsett, Missing Words lays out the practical steps families can take to adjust to a loved one’s hearing loss. This excellent guidebook shows how the exchange of information can be altered at fundamental levels, what these alterations entail, and how they can affect one’s ability to understand and interpret spoken communication. Along with the hands-on tips provided throughout, this handbook considers the potential of cochlear implants, described both by audiologist Holden and by Nickerson, who underwent implant surgery in 1985. For all families coping with a loved one’s hearing loss, Missing Words is the outstanding single resource upon which they can rely.
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The Handbook of Pediatric Audiology
Sanford Gerber
Gallaudet University Press, 2000
Library of Congress RF291.5.C45H26 1996 | Dewey Decimal 618.920978

Now available in paperback; ISBN 1-56368-109-9
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Genetics, Disability, and Deafness
John Vickrey Van Cleve
Gallaudet University Press, 2004
Library of Congress RF292.G465 2004 | Dewey Decimal 617.8042

Pulitzer Prize-winning author Louis Menand begins this wide-ranging volume with an essay that extols diversity and warns of the dangers of modifying the human genome. Nora Groce reviews the ways that societies have defined disability and creates an interpretive framework for discussing the relationship between culture and disability.

     In essays devoted to historical perspective, Brian H. Greenwald comments upon the real “toll” taken by A. G. Bell’s insistence upon oralism, while Joseph J. Murray weighs the nineteenth-century debate over whether deaf-deaf marriages should be encouraged. John S. Schuchman’s chilling account of deafness and eugenics in the Nazi era adds wrenching reinforcement to the impetus to include disabled people in genetics debates.

     Mark Willis offers an intensely personal reflection on the complexities of genetic alteration, addressing both his heart condition and his blindness in surprisingly different ways. Anna Middleton extends Willis’s concepts in her discussion of couples currently considering the use of genetic knowledge and technology to select for or against a gene that causes deafness.

     In the part on the science of genetics, Orit Dagan, Karen B. Avraham, Kathleen S. Arnos, and Arti Pandya clarify the choices presented by genetic engineering, and geneticist Walter E. Nance emphasizes the importance of science in offering individuals knowledge from which they can fashion their own decisions. In the concluding section, Christopher Krentz raises moral questions about the ever-continuing search for human perfection, and Michael Bérubé argues that disability should be considered democratically to ensure full participation of disabled people in all decisions that might affect them.

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Orchid of the Bayou: A Deaf Woman Faces Blindess
Cathryn Carroll
Gallaudet University Press, 2001
Library of Congress RF292.8.C37 2002 | Dewey Decimal 362.41092

In graduating from Gallaudet University, finding a job in Washington, D.C., and starting a family with her college sweetheart, Kitty Fischer tacitly abandoned the Louisiana Cajun culture that had exposed her to little more than prejudice and misery as a child. Upon discovering that she suffered from Usher syndrome (a genetic condition that causes both deafness and blindness), however, Fischer began an unlikely journey toward reclaiming her heritage. She and Cathryn Carroll tell the story of her heroic struggle and cultural odyssey in Orchid of the Bayou: A Deaf Woman Faces Blindness.

“By this time Mama knew I was ‘not right,’” Fischer says of her early childhood. “She knew the real words for ‘not right,’ too, though she never said those words. I was deaf and dumb.” Initially Fischer’s parents turned to folk healers to try and “cure” their daughter’s deafness, but an aunt’s fortunate discovery of the Louisiana School for the Deaf would rescue Fischer from misunderstanding and introduce her to sign language and Deaf culture. She weathered the school’'s experiments with oralism and soon rose to the top of her class, ultimately leaving Louisiana for the academic promise of Gallaudet.

While in college, Fischer met and married her future husband, Lance, a Jewish Deaf man from Brooklyn, New York, and each landed jobs close to their alma mater. After the birth of their first child, however, Fischer could no longer ignore her increasing tunnel vision. Doctors quickly confirmed that Fischer had Usher syndrome.

While Fischer struggled to come to terms with her condition, the high incidence of Usher syndrome among Cajun people led her to re-examine her cultural roots. “Could I still be me, Catherine Hoffpauir Fischer, had I not been born of a mix that codes for Usher syndrome?” she asks. “To some extent, the history of my people explains the constitution of my genes and the way my life has unfolded.” Today Fischer prospers, enjoying her time with family and friends and celebrating the Deaf, Cajun, Blind, and Jewish cultures that populate her life. Her lively story will resonate with anyone who recognizes the arduous journey toward claiming an identity.

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Overcoming Hearing Aid Fears: The Road to Better Hearing
Burkey, John M.
Rutgers University Press, 2003
Library of Congress RF300.B87 2003 | Dewey Decimal 617.89

Named one of the Best Consumer Health Books by the Library Journal 2003

There are dozens of misconceptions about hearing aids:

  • “They make you look old.”
  •  “They cause ear infections.”
  • “They increase hearing loss.”
  • “I can’t afford one.” 
This misinformation impairs a person’s quality of life by discouraging them from pursuing help. Technological advances have enabled hearing aids to address a greater range of hearing losses, while making them smaller, better designed, and easier to use than those of the past. More people than ever can benefit from a hearing aid, yet of the nearly thirty million people with a hearing impairment, only about 20 percent choose to use one.

In Overcoming Hearing Aid Fears, audiologist John M. Burkey addresses common fears, concerns, and misconceptions about hearing aids to help readers decide whether these devices will prove useful. Using an informal, anecdotal style informed by years of clinical practice, Burkey provides practical information about hearing aid styles, options, and costs. His expertise and experience in caring for more than 50,000 patients will help people with hearing loss address their personal concerns. The book also helps friends and family understand why a loved one might resist getting a hearing aid, and offers tips on counseling. Audiologists will find this text an important educational tool in advising their own patients.

Approximately 10 percent of Americans (and nearly one-third of people age seventy and older) have some degree of hearing loss that, if left untreated, causes frustration, isolation, and depression. A hearing aid is a simple tool to improve careers, relationships, and self-esteem, and to provide independence and security. Overcoming Hearing Aid Fears can help readers take that first step to a better life.
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Coming to My Senses: One Woman's Cochlear Implant Journey
Claire H. Blatchford
Gallaudet University Press, 2014
Library of Congress RF305.B53 2014 | Dewey Decimal 617.89092

Deafened at the age of six, Claire Blatchford was educated orally with speech lessons, speechreading, and hearing aids. Though successful both professionally and domestically, at the age of 67 Blatchford decided to undergo a cochlear implantation. In this memoir, she describes in prose and verse living with a cochlear implant for the past three years.
 
     At first, Blatchford feared losing the last of her hearing through the surgical process. Her audiologist explained that her hearing was worsening and that soon she would move from profound deafness into a state called “cosmic deafness.” Blatchford decided upon the surgery in hope of meeting her hearing family on their turf, and of again hearing the wind, rain, rivers, and crickets. After being implanted, however, she realized that amplification and comprehension were two different things: at first, all she heard was a soup of sound, a condition known as being brain deaf.

     Blatchford soon learned, however, that regaining her hearing was a journey of discovery. Gradually, the sound soup gave way to the ability to hear some sentences without speechreading. The sound of her own voice surprised her, and she could hear her grandchildren speak. The thrill of new things heard on one car trip to a friend’s house moved her to “try my first yodel as I pass by your house.” When asked by others if they should receive an implant, she cautions that it is an individual decision that each deaf person must make. For her, it was the right decision.

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The Artificial Ear: Cochlear Implants and the Culture of Deafness
Blume, Stuart
Rutgers University Press, 2009
Library of Congress RF305.B58 2010 | Dewey Decimal 617.88220592

When it was first developed, the cochlear implant was hailed as a "miracle cure" for deafness. That relatively few deaf adults seemed to want it was puzzling. The technology was then modified for use with deaf children, 90 percent of whom have hearing parents. Then, controversy struck as the Deaf community overwhelmingly protested the use of the device and procedure. For them, the cochlear implant was not viewed in the context of medical progress and advances in the physiology of hearing, but instead represented the historic oppression of deaf people and of sign languages.

Part ethnography and part historical study, The Artificial Ear is based on interviews with researchers who were pivotal in the early development and implementation of the new technology. Through an analysis of the scientific and clinical literature, Stuart Blume reconstructs the history of artificial hearing from its conceptual origins in the 1930s, to the first attempt at cochlear implantation in Paris in the 1950s, and to the widespread clinical application of the "bionic ear" since the 1980s.

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Cochlear Implants in Children: Ethics and Choices
John B. Christiansen
Gallaudet University Press, 2002
Library of Congress RF305.C485 2002 | Dewey Decimal 618.92097882

Cochlear Implants in Children: Ethics and Choices addresses every facet of the ongoing controversy about implanting cochlear hearing devices in children as young as 12 months old and in some cases, younger. Authors John B. Christiansen and Irene W. Leigh and contributors Jay Lucker and Patricia Elizabeth Spencer analyzed the sensitive issues connected with the procedure by reviewing 439 responses to a survey of parents with children who have cochlear implants. They followed up with interviews of the parents of children who have had a year's experience using their implants, and also the children themselves. Their findings shape the core of this useful and telling study. Cochlear Implants begins with a history of their development and an explanation of how implants convert sound into electric impulses that stimulate the brain. The second section focuses on pediatric implants, starting with the ways parents coped with the discovery that their child was deaf. Parents share how they learned about cochlear implants and how they chose an implant center. They also detail their children's experiences with the implants after surgery, and their progress with language acquisition and in school. The final part treats the controversy associated with cochlear implants, particularly the reaction of the Deaf community and the ethics of implanting young children without their consent. Cochlear Implants concludes with sage observations and recommendations for parents and professionals that complete it as the essential book on the pros and cons of this burgeoning technology. John B. Christiansen is Professor of Sociology at Gallaudet University. Irene W. Leigh is Professor of Psychology at Gallaudet University.
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The Parents' Guide to Cochlear Implants
Patricia M. Chute
Gallaudet University Press, 2002
Library of Congress RF305.C487 2002 | Dewey Decimal 617.882

Now, parents of deaf children have at hand a complete guide to the process of cochlear implantation. Written by two eminent professionals in deaf education, The Parents' Guide to Cochlear Implants explains in a friendly, easy-to-follow style each stage of the process. Parents will discover how to have their child evaluated to determine her or his suitability for an implant. They'll learn about implant device options, how to choose an implant center, and every detail of the surgical procedure. The initial "switch-on" is described along with counseling about device maintenance. Most importantly, parents will learn their roles in helping their child adjust to and successfully use the cochlear implant. The Parents' Guide to Cochlear Implants emphasizes such critical subjects as learning to listen through home activities, implants as tools for language development, and critical issues regarding school placement. This encouraging book considers the implications for performance in light of the whole child, including issues related to Deaf culture and cochlear implants. The authors also include brief stories by parents whose children have had implants that provide reassuring actual experiences to parents considering the procedure for their own child. With a last word on parenting perspectives and a rich source of resources in the appendices, this one-of-a-kind guide will arm parents of deaf children with complete confidence to make informed decisions about cochlear implantation. Patricia M. Chute is Associate Professor in the Department of Communication Disorders at Mercy College, Dobbs Ferry, NY. Mary Ellen Nevins is Professor in the Department of Communication Disorders and Deafness at Kean University, Union, New Jersey.
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Cochlear Implants: Evolving Perspectives
Raylene Paludneviciene
Gallaudet University Press, 2011
Library of Congress RF305.C622 2011 | Dewey Decimal 617.89

The cochlear implant debate has changed, as evidenced in this cogent collection that presents 13 chapters by 20 experts, including several who communicate through sign language but also utilize cochlear implants. The impetus for this change stems from recognition that both visual and aural input can enhance the education of deaf children.

Divided into four sections, Cochlear Implants: Evolving Perspectives first focuses on the impact of implants in the Deaf community. Chapters in this section examine the issues driving the cochlear implant debate, the ethics of genetic engineering, experiences of implanted adult deaf signers, reflections of deaf mothers who have had their children implanted, and the effects of implants on deaf identity. The second section delves into the mechanics of bimodal processing, including listening strategies that can benefit signing children with cochlear implants. The third section surveys combined aural/visual educational approaches, such as teaching implanted children in an ASL/English bilingual classroom, and applying auditory rehabilitation to a signed communication context.

The final section challenges readers to reframe the debate first by exploring sensory politics, then by envisioning an emerging world that requires the Deaf community to connect with it to secure its future. With this information, readers will reach their own conclusions about cochlear implants and auditory and visual approaches to the mastery of both spoken and signed languages.

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Surgical Consent: Bioethics and Cochlear Implantation
Linda Komesaroff
Gallaudet University Press, 2007
Library of Congress RF305.S85 2007

With the rate of cochlear implantation reaching 80% to 90% of all deaf children, some as young as five months old, Surgical Consent: Bioethics and Cochlear Implantation arrives at a critical juncture. This comprehensive collection features essays by Priscilla Alderson, Inger Lise Skog Hansen, Hilde Haualand, volume editor Linda Komesaroff, Paddy Ladd, Harlan Lane, Karen Lloyd, Eithne Mills, Paal Richard Peterson, Gunilla Preisler, Kristina Svartholm, and Michael Uniacke. These worldwide renowned ethicists, educators, and Deaf leaders express their diverse perspectives on the bioethics of childhood cochlear implantation according to their discipline and a number of themes of inquiry: human rights, medical and social ethics, psychology, education, globalization, identity, life pathways, democracy, media, law, and biotechnology.

Drawing on current research, this volume presents the varying reactions around the globe to the high rate of implantation. These views contrast sharply with the medical perspective of deafness overwhelmingly promoted through the media and by the cochlear implantation industry. At the same time, the contributors aim to disrupt the binaries that have long dominated the field of deafness — speech versus sign, instruction through speech and sign systems versus bilingual education, and medical intervention versus cultural membership in the Deaf community.

Surgical Consent begins and ends with the voices of Deaf people. Their articulate and, at times, raw insights clearly delineate the issues of power, positioning, and minority-majority group relations that are inherent in the dominant hearing culture’s understanding of diversity and globalization.

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A Mother’s Manual for the Women of Ferrara: A Fifteenth-Century Guide to Pregnancy and Pediatrics
Michele Savonarola
Iter Press, 2022
Library of Congress RG67.I8 | Dewey Decimal 618.200945451

The first treatise of its kind to be written in a European vernacular.

Around 1460, Michele Savonarola produced the extraordinary Mother’s Manual for the Women of Ferrara, a gynecological, obstetrical, and pediatric treatise composed in the vernacular so that it could be read not only by the learned but also by pregnant and nursing mothers and the midwives and wet nurses who presided over childbirth. Savonarola’s work is not merely a trivial set of instructions, but the work of a learned scholar who drew on, among others, the ancient Greek physicians Hippocrates and Galen, and Avicenna’s Canon of Medicine. The first of its kind, Savonarola’s Mother’s Manual helps readers understand both the development of late-medieval and early-modern obstetrics and gynecology, as well as the experiences of women who turn to advice books for help with reproductive issues. This book also provides a key to understanding why and how a new genre of book—the midwifery manual or advice book for pregnant women—arose in sixteenth-century Italy and eventually became a popular genre all over Europe from the early modern period to the present day. 
 
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Tell the Driver: A Biography of Elinor F.E. Black, MD
Julie Vandervoort
University of Manitoba Press, 1992
Library of Congress RG76.B57V36 1992 | Dewey Decimal 618.092

The Love Surgeon: A Story of Trust, Harm, and the Limits of Medical Regulation
Sarah B. Rodriguez
Rutgers University Press, 2020
Library of Congress RG76.B87R63 2020 | Dewey Decimal 618.10092

Dr. James Burt believed women’s bodies were broken, and only he could fix them. In the 1950s, this Ohio OB-GYN developed what he called “love surgery,” a unique procedure he maintained enhanced the sexual responses of a new mother, transforming her into “a horny little house mouse.” Burt did so without first getting the consent of his patients. Yet he was allowed to practice for over thirty years, mutilating hundreds of women in the process.

It would be easy to dismiss Dr. Burt as a monstrous aberration, a modern-day Dr. Frankenstein. Yet as medical historian Sarah Rodriguez reveals, that’s not the whole story. The Love Surgeon asks tough questions about Burt’s heinous acts and what they reveal about the failures of the medical establishment: How was he able to perform an untested surgical procedure? Why wasn’t he obliged to get informed consent from his patients? And why did it take his peers so long to take action?

The Love Surgeon is both a medical horror story and a cautionary tale about the limits of professional self-regulation.
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Books nearby on Shelf:
The Lightning Stick
Arrows, Wounds, And Indian Legends
H. Henrietta Stockel
University of Nevada Press, 1995

More than simply a history of the bow and arrow, The Lightening Stick brings together a broad range of significant people and events, spiritual usages, medicinal treatments, and an unusual array of subject matter related to the weapon itself. Henrietta Stockel conveys a host of information derived from primary documents and provides readers with a fascinating book. Her descriptive storytelling—serious, humorous, and even gory at times—takes the reader from modern uses of bows and arrows (including a previously little-known incident in the atomic city of Los Alamos, New Mexico) to an early era of western history, before guns changed the frontier forever.

[more]

Face/On
Face Transplants and the Ethics of the Other
Sharrona Pearl
University of Chicago Press, 2017
Are our identities attached to our faces? If so, what happens when the face connected to the self is gone forever—or replaced? In Face/On, Sharrona Pearl investigates the stakes for changing the face–and the changing stakes for the face—in both contemporary society and the sciences.
 
The first comprehensive cultural study of face transplant surgery, Face/On reveals our true relationships to faces and facelessness, explains the significance we place on facial manipulation, and decodes how we understand loss, reconstruction, and transplantation of the face. To achieve this, Pearl draws on a vast array of sources: bioethical and medical reports, newspaper and television coverage, performances by pop culture icons, hospital records, personal interviews, films, and military files. She argues that we are on the cusp of a new ethics, in an opportune moment for reframing essentialist ideas about appearance in favor of a more expansive form of interpersonal interaction. Accessibly written and respectfully illustrated, Face/On offers a new perspective on face transplant surgery as a way to consider the self and its representation as constantly present and evolving. Highly interdisciplinary, this study will appeal to anyone wishing to know more about critical interventions into recent medicine, makeover culture, and the beauty industry.
 
[more]

Cleavage
Technology, Controversy, and the Ironies of the Man-Made Breast
Jacobson, Nora
Rutgers University Press, 1999
Women's breasts have been idealized as symbols of femininity and motherhood. They have held great social and psychological significance as objects drawing intrusive gazes, and as images of self worth to be measured against an idealized form. It is no wonder, then, that a technology emerged to alter and "enhance" their appearance. Nora Jacobson traces the hundred-year history of one such technology: breast implants.

Organized both chronologically and thematically, this book examines the history of breast implant technology from 1895 to 1990, including the controversies that erupted in the early 1990s over the safety of the devices and the Food and Drug Administration's regulation of their use. Jacobson examines such topics as politics and bias in medical practice and the role of bureaucracies, corporations, and governments in establishing policy and regulating implant technology.
[more]

Silicone Survivors
Women's Experiences with Breast Implants
Susan Zimmermann
Temple University Press, 1998
Susan Zimmermann talked with forty women about perhaps one of the most sensitive issues of body image and health - their breasts, the chief attribute of femininity. In the aftermath of the early 1990s controversy over the use of silicone breast implants, how do women decide to undergo surgery o enhance or reconstruct their bodies? How does surgery alter a woman's self-image? How did they face the possibility of debilitating autoimmune disease from rupturing or leaking implants?

Some opted for breast implants after mastectomies, others for cosmetic reasons. Some felt empowered by the surgery: "Being a woman, I just like breasts and felt like I got ripped off. ... I did it for myself." Others were pressured by their husbands: "He used to make fun of parts of my body. .... And, he made me believe that if I was ever to leave him, no one would have anything to do with me because I was this deformed type of person."

After surgery, some women were ecstatic, while others had a sense of inner conflict about what they had done to themselves: were they "faking it"? And a few were angry: "I was really angry inside that I had  had to put plastic bags filled with chemicals in my body in order for me to feel like I could do the Hoochie Koo on Saturday nights. ... I didn't wear tight clothes; I didn't want my children to find out."

Now, having faced years of medical and personal uncertainty, many have coped by reassessing their lives and their relationships, by sharing information and support with other women with implants, outreach that became a means for self-empowerment.
[more]

Obesity Surgery
Stories Of Altered Lives
Marta Meana
University of Nevada Press, 2008
Obesity is a major national health problem, and science has been developing a number of ways to address it. The most revolutionary is surgical intervention to alter the gastrointestinal system so that less food/nutrients can be consumed and/or absorbed. People who undergo this surgery usually experience drastic weight loss and dramatic health improvements. They also discover a new sense of self and face challenges often unimaginable when they were obese.
Using in-depth, first person accounts of 33 men and women who underwent weight-loss surgery, this book elaborates on the complexities of finally getting what you wished for— the good, the bad, and the totally unexpected.
We live in a culture fascinated by physical make-overs, but no one talks about their psychological consequences. Losing a lot of weight is perhaps the most extreme make-over of all. It leaves people emotionally changed, and these changes are the heart of this book.The fascinating narratives contain important lessons for individuals considering or having had the surgery and for those who try to help them. It is simply a story of how finally getting what you’ve always wished for can be much more complicated affair than you ever imagined.
[more]

Obesity Surgery
Stories Of Altered Lives
Marta Meana
University of Nevada Press, 2008
Obesity is a major national health problem, and science has been developing a number of ways to address it. The most revolutionary is surgical intervention to alter the gastrointestinal system so that less food/nutrients can be consumed and/or absorbed. People who undergo this surgery usually experience drastic weight loss and dramatic health improvements. They also discover a new sense of self and face challenges often unimaginable when they were obese.
Using in-depth, first person accounts of 33 men and women who underwent weight-loss surgery, this book elaborates on the complexities of finally getting what you wished for— the good, the bad, and the totally unexpected.
We live in a culture fascinated by physical make-overs, but no one talks about their psychological consequences. Losing a lot of weight is perhaps the most extreme make-over of all. It leaves people emotionally changed, and these changes are the heart of this book.The fascinating narratives contain important lessons for individuals considering or having had the surgery and for those who try to help them. It is simply a story of how finally getting what you’ve always wished for can be much more complicated affair than you ever imagined.
[more]

Domesticating Organ Transplant
Familial Sacrifice and National Aspiration in Mexico
Megan Crowley-Matoka
Duke University Press, 2016
Organ transplant in Mexico is overwhelmingly a family matter, utterly dependent on kidneys from living relatives—not from stranger donors typical elsewhere. Yet Mexican transplant is also a public affair that is proudly performed primarily in state-run hospitals. In Domesticating Organ Transplant, Megan Crowley-Matoka examines the intimate dynamics and complex politics of kidney transplant, drawing on extensive fieldwork with patients, families, medical professionals, and government and religious leaders in Guadalajara. Weaving together haunting stories and sometimes surprising statistics culled from hundreds of transplant cases, she offers nuanced insight into the way iconic notions about mothers, miracles, and mestizos shape how some lives are saved and others are risked through transplantation. Crowley-Matoka argues that as familial donors render transplant culturally familiar, this fraught form of medicine is deeply enabled in Mexico by its domestication as both private matter of home and proud product of the nation. Analyzing the everyday effects of transplant’s own iconic power as an intervention that exemplifies medicine’s death-defying promise and commodifying perils, Crowley-Matoka illuminates how embodied experience, clinical practice, and national identity produce one another.
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New Organs Within Us
Transplants and the Moral Economy
Asl1han Sanal
Duke University Press, 2011
New Organs Within Us is a richly detailed and conceptually innovative ethnographic analysis of organ transplantation in Turkey. Drawing on the moving stories of kidney-transplant patients and physicians in Istanbul, Aslihan Sanal examines how imported biotechnologies are made meaningful and acceptable not only to patients and doctors, but also to the patients’ families and Turkish society more broadly. She argues that the psychological theory of object relations and the Turkish concept of benimseme—the process of accepting something foreign by making it one’s own—help to explain both the rituals that physicians perform to make organ transplantation viable in Turkey and the psychic transformations experienced by patients who suffer renal failure and undergo dialysis and organ transplantation. Soon after beginning dialysis, patients are told that transplantable kidneys are in short supply; they should look for an organ donor. Poorer patients add their names to the state-run organ share lists. Wealthier patients pay for organs and surgeries, often in foreign countries such as India, Russia, or Iraq. Sanal links Turkey’s expanding trade in illegal organs to patients’ desires to be free from dialysis machines, physicians’ qualms about declaring brain-death, and media-hyped rumors of a criminal organ mafia, as well as to the country’s political instability, the privatization of its hospitals, and its position as a hub in the global market for organs.
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American Lobotomy
A Rhetorical History
Jenell Johnson
University of Michigan Press, 2014
American Lobotomy studies a wide variety of representations of lobotomy to offer a rhetorical history of one of the most infamous procedures in the history of medicine. The development of lobotomy in 1935 was heralded as a “miracle cure” that would empty the nation’s perennially blighted asylums. However, only twenty years later, lobotomists initially praised for their “therapeutic courage” were condemned for their barbarity, an image that has only soured in subsequent decades.  Johnson employs previously abandoned texts like science fiction, horror film, political polemics, and conspiracy theory to show how lobotomy’s entanglement with social and political narratives contributed to a powerful image of the operation that persists to this day. The book provocatively challenges the history of medicine, arguing that rhetorical history is crucial to understanding medical history. It offers a case study of how medicine accumulates meaning as it circulates in public culture and argues for the need to understand biomedicine as a culturally situated practice.

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The Man with a Shattered World
The History of a Brain Wound
A. R. Luria
Harvard University Press, 1987

Russian psychologist A. R. Luria presents a compelling portrait of a man’s heroic struggle to regain his mental faculties. A soldier named Zasetsky, wounded in the head at the battle of Smolensk in 1943, suddenly found himself in a frightening world: he could recall his childhood but not his recent past; half his field of vision had been destroyed; he had great difficulty speaking, reading, and writing.

Much of the book consists of excerpts from Zasetsky’s own diaries. Laboriously, he records his memories in order to reestablish his past and to affirm his existence as an intelligent being. Luria’s comments and interpolations provide a valuable distillation of the theory and techniques that guided all of his research. His “digressions” are excellent brief introductions to the topic of brain structure and its relation to higher mental functions.

[more]

Spinal Cord Injury and the Family
A New Guide
Michelle J. Alpert M.D.
Harvard University Press, 2008

Spinal cord injury, or SCI, is frequently sudden and unexpected—through accident, disease, or violence, patients temporarily lose control of their bodies and, it seems, their lives. With rehabilitation, they can learn to navigate their world once more, retraining muscles and mind to compensate for paralyzed limbs and diminished strength. But as Dr. Michelle Alpert shows here, there is far more to recapturing full, independent lives than regaining movement. Central to long-term success is mending the family unit.

Combining Dr. Alpert’s clinical experience with patients’ own stories, Spinal Cord Injury and the Family is for individuals and their families who must climb back from injury: for the young quad couple, both quadriplegic, who wish to conceive and raise a child; for the paraplegic dad who wants to teach his daughter to drive; for the couple wondering how they can regain the sexual spark in their relationship.

The authors cover the causes of and prognosis for SCI through case studies, review common courses of rehabilitation, and answer the “what now?” questions—from daily routines to larger issues concerning sex, education and employment, childbearing, and parenting with SCI. Rich in clinical information and practical advice, the book shows how real patients and their families are living full lives after spinal cord injury.

[more]

Deep
Real Life with Spinal Cord Injury
Marcy Epstein and Travar Pettway, Editors
University of Michigan Press, 2007

"This project fits into the larger picture of excellence that we wish to accomplish in all dimensions of our health system: groundbreaking and dedicated research, compassionate clinical care, progressive education, and a welcoming environment that includes community with people with disabilities. In Deep, the writers and editors of this book realize this mission with accuracy and clarity."
---Denise G. Tate, Director of Research at the University of Michigan Model Spinal Cord Injury Care System

People with spinal cord injuries experience life beyond their medical and rehabilitative journeys, but these stories are rarely told. Deep: Real Life with Spinal Cord Injury includes the stories of ten men and women whose lives have been transformed by spinal cord injury. Each essay challenges the stereotypes and misconceptions about SCI---with topics ranging from faith to humility to sex and manhood---offering a multitude of voices that weave together to create a better understanding of the diversity of disability and the uniqueness of those individuals whose lives are changed but not defined by their injuries. Life with SCI can be traumatic and ecstatic, uncharted and thrilling, but it always entails a journey beyond previous expectations. This volume captures this sea change, exploring the profound depths of SCI experience.

[more]

A User’s Guide to Bypass Surgery
Ted Klein
Ohio University Press, 1996

Thirty Rooms to Hide In
Insanity, Addiction, and Rock ‘n’ Roll in the Shadow of the Mayo Clinic
Luke Longstreet Sullivan
University of Minnesota Press, 2014

Author Luke Longstreet Sullivan has a simple way of describing his new memoir: “It’s like The Shining . . . only funnier.” Thirty Rooms to HideIn tells the astonishing story of Sullivan’s father and his descent from one of the world’s top orthopedic surgeons at the Mayo Clinic to a man who is increasingly abusive, alcoholic, and insane, ultimately dying alone on the floor of a Georgia motel room. For his wife and six sons, the years prior to his death were characterized by turmoil, anger, and family dysfunction; but somehow they were also a time of real happiness for Sullivan and his brothers, full of dark humor and much laughter.

Through the 1950s and 1960s, the six brothers had a wildly fun and thoroughly dysfunctional childhood living in a forbidding thirty-room mansion, known as the Millstone, on the outskirts of Rochester, Minnesota. The many rooms of the immense home, as well as their mother’s loving protection, allowed the Sullivan brothers to grow up as normal, mischievous boys. Against a backdrop of the times—the Cold War, the Cuban Missile Crisis, fallout shelters, JFK’s assassination, and the Beatles—the cracks in their home life and their father’s psyche continue to widen. When their mother decides to leave the Millstone and move the family across town, the Sullivan boys are able to find solace in each other and in rock ’n’ roll.

As Thirty Rooms to HideIn follows the story of the Sullivan family—at times grim, at others poignant—a wonderful, dark humor lifts the narrative. Tragic, funny, and powerfully evocative of the 1950s and 1960s, Thirty Rooms to Hide In is a tale of public success and private dysfunction, personal and familial resilience, and the strange power of humor to give refuge when it is needed most, even if it can’t always provide the answers.

[more]

The Man Behind the Mask
Journey of an Orthopaedic Surgeon
Thomas H. Mallory, M.D.
University of Missouri Press, 2007

  The perils of aging are many, but the debilitating effects of serious illness loom large. In this stirring memoir, readers will discover a man who improved the lives of many arthritis sufferers before himself succumbing to a cruel debilitating disease. The Man behind the Mask tells the story of Thomas Mallory, who was inspired to become a doctor after undergoing surgery for a high school football injury. He went on to become a renowned surgeon and a pioneer in joint replacement. In 2002, his successful career came to an abrupt halt when he was diagnosed with Parkinson’s disease.

            Mallory was one of the first surgeons in the United States to see the potential for joint replacement technology, and in this memoir he describes not only the nuances of introducing hip replacement surgery but also the systems that he established to make it a highly successful operation. He tells how he overcame initial resistance to the procedure and became a respected teacher of the technology, training many surgeons who went on to successful careers, lecturing about his procedure around the world, and also seeing VIP patients who journeyed to Ohio just to be operated on by him.

            As a pioneer in this type of operation, Mallory first recognized the value of using prosthetic innovation and development. He became a proponent of modularity in joint replacement surgery, which allowed a surgeon to customize a prosthesis to a patient’s joint in the operating room. His innovations, along with those of Dr. William Head, resulted in the introduction in 1983 of the Mallory-Head Hip System—a technology still in use today and one that has offered relief to thousands of patients.

            Tracing the joys and sorrows of his own career, Mallory dispels the myth that surgeons are emotionally invulnerable and cold. He offers his perspective on the pursuit of medicine as a profession, on the doctor-patient relationship, and on litigious challenges to physicians. He also commends the benefits of family and leisure and the blessing of life in general while offering insight into the management of an incurable disease.

            In our skeptical era, Thomas Mallory is a shining example of a prominent scientist who has maintained his faith in God throughout the highs and lows of life. The Man behind the Mask is an inspiring account for fellow professionals and general readers, as well as for those who have benefited from the procedures he introduced.

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Mechatronic Hands
Prosthetic and robotic design
Paul H. Chappell
The Institution of Engineering and Technology, 2016
This book describes the technical design characteristics of the main components that go into forming an artificial hand, whether it is a simple design that does not have a natural appearance, or a more complicated design where there are multiple movements of the fingers and thumb. Mechanical components obviously form the structure of any hand, while there are some lesser known ideas that need to be explored such as how to process a slip signal.
[more]

The Wounds That Bind Us
Kelley Shinn
West Virginia University Press, 2023

The improbable and powerful true story of a single mother with prosthetics for both legs who travels the globe with her young daughter in a Land Rover.

The Wounds That Bind Us is the improbable true story of Kelley Shinn, an orphan at birth who loses her legs at the age of sixteen to a rare bacterial pathogen. She becomes an avid off-road racer and, as a single mother, attempts to drive around the globe in a Land Rover with her three-year-old daughter in tow to bring light to the plight of land mine survivors. With unflinching honesty, exceptional lyricism, and biting humor, Shinn (“that’s two Ns and no shins”) takes readers on a wild journey—literal and emotional—filled with striking characters and landscapes, heartbreaks, and hard-won insights, ultimately arriving at a place of profound redemption.

Told with the energy and intensity of the adventure story it is, this terrifically rich and nuanced examination of a life is also a careful meditation on renewal—a remapping of the world. Guided by the narrator’s keen introspection and her ability to look resolutely at harrowing sorrows and still find hope, joy, and meaning, The Wounds That Bind Us will resonate deeply, long after the last page.

[more]

All about Your Eyes
Sharon Fekrat, M.D., FACS and Jennifer S. Weizer, M.D., eds.
Duke University Press, 2005
A concise, easy-to-understand reference book, All about Your Eyes tells you what you need to know to care for your eyes and what to expect from your eye doctor.

In this reliable guide, leading eye care experts:
—explain how healthy eyes work
—describe various eye diseases, including pink eye, cataract, glaucoma, age-related macular degeneration, and diabetic retinopathy
—provide up-to-date information on eye surgery, including refractive, laser, and cosmetic

For each eye problem, the authors describe in simple, straightforward language
—what it is
—the symptoms
—what, if anything, you can do to prevent it
—when to call the doctor
—the treatment
—the likelihood of recovery

All about Your Eyes includes a glossary of technical terms and, following each entry, links to web sites where further information may be found.

[more]

All about Your Eyes, Second Edition, revised and updated
Sharon Fekrat, Tanya S. Glaser, and Henry L. Feng, editors
Duke University Press, 2021
A concise, easy-to-understand reference book, the revised and updated second edition of All about Your Eyes tells you what you need to know to care for your eyes and what to expect from your eye doctor. In this reliable guide, leading eye care experts:
* explain eye anatomy and how healthy eyes work
* describe various eye diseases, including pink eye, cataract, glaucoma, age-related macular degeneration, and diabetic retinopathy
* provide up-to-date information on surgery
For each eye problem, the authors describe in simple, straightforward language:
* what it is
* the symptoms
* what, if anything, you can do to prevent it
* when to call the doctor
* diagnostic tests and treatment
* the likelihood of recovery
All about Your Eyes includes a glossary of technical terms and, following each entry, links to websites where further information may be found.

Contributors. Natalie A. Afshari, MD, Rosanna P. Bahadur, MD, Paramjit K. Bhullar, MD, Faith A. Birnbaum, MD, Cassandra C. Brooks, MD, Pratap Challa, MD, Melissa Mei-Hsia Chan, MBBS, Ravi Chandrashekhar, MD, MSEE, Nathan Cheung, OD, FAAO Claudia S. Cohen, MD, Vincent A. Deramo, MD, Cathy DiBernardo, RN, Laura B. Enyedi, MD, Sharon Fekrat, MD, Henry L. Feng, MD, Brenton D. Finklea, MD, Anna Ginter, MD, Tanya S. Glaser, MD, Michelle Sy Go, MD, MS, Mark Goerlitz-Jessen, MD, Herb Greenman, MD, Abhilash Guduru, MD, Preeya Gupta, MD, Renee Halberg, MSW, LCSW, S. Tammy Hsu, MD, Alessandro Iannaccone, MD, MS, FARVO, Charlene L. James, OD, Kim Jiramongkolchai, MD, Michael P. Kelly, FOPS, Muge R. Kesen, MD, Kirin Khan, MD, Wajiha Jurdi Kheir, MD, Jane S. Kim, MD, Jennifer Lira, MD, Katy C. Liu, MD, PhD, Ramiro S. Maldonado, MD, Ankur Mehra, MD, Priyatham S. Mettu, MD, Prithvi Mruthyunjaya, MD, MHS, Nisha Mukherjee, MD, Kenneth Neufeld, MD, Kristen Peterson, MD, James H. Powers, MD, S. Grace Prakalapakorn, MD, MPH, Michael Quist, MD, Leon Rafailov, MD, Roshni Ranjit-Reeves, MD, Nikolas Raufi, MD, William Raynor, BS, Cason Robbins, BS, Ananth Sastry, MD, Dianna L. Seldomridge, MD, MBA, Terry Semchyshyn, MD, Ann Shue, MD, Julia Song, MD, Brian Stagg, MD, Christopher Sun, MBBS, Anthony Therattil, BS, Daniel S.W. Ting, MBBS, Fay Jobe Tripp, MS, OTR/L, CLVT, CDRS, Obinna Umunakwe, MD, PhD, Lejla Vajzovic, MD, Susan M. Wakil, MD, C. Ellis Wisely, MD, MBA, Julie A. Woodward, MD
[more]

The Wonderful Art of the Eye
A Critical Edition of the Middle English Translation of his De Probatissimo Arte Oculorum
L. M. Eldredge
Michigan State University Press, 1996

A thirteenth-century treatise on the theory and practice of ophthalmology, this unique work provides a window on what passed for medical knowledge of the eye during the late Middle Ages. Although little is known of the author, Benevenutus Grassus, he seems to have roamed Italy in the early thirteenth century as a medical practitioner specializing in diseases of the eye.

[more]

Sound Sense
Living and Learning with Hearing Loss
Sara Laufer Batinovich
Gallaudet University Press, 2011

One out of every eight people between the ages of 18 and 67 in the United States has a hearing loss, estimated as 12 percent of the working-age population. Sound Sense: Living and Learning with Hearing Loss addresses the acute need of these people to function at the highest level in these income-earning years, the longest phase in their lives. In nine pointed chapters, author Sara Laufer Batinovich, who also has lost her hearing, shares her experience and knowledge in turning every challenge into an opportunity to become one’s best self-advocate.

Batinovich begins in the workplace, advising on winning a job, keeping it, and developing a long-term career, plus how to reduce stress and establish fulfilling professional relationships with colleagues. She offers tips on communication ranging from having sales people face you for easier speechreading to parsing boarding announcements at airports and play-by-play at ballparks. Her practical handbook also provides step-by-step guidance for getting a hearing aid or a cochlear implant and finding one’s way through prickly insurance claim mazes.

Sound Sense features information on finding a service dog, securing legally mandated accommodations for continuing education, tips on exercise and health, and even sensitive suggestions on strengthening personal relationships. Batinovich’s vivacious style and her own anecdotes add an upbeat, genuine sensibility to her book’s value as a positive guide to living with hearing loss.

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Baby Boomers and Hearing Loss
A Guide to Prevention and Care
Burkey, John M
Rutgers University Press, 2006

In Baby Boomers and Hearing Loss, audiologist John Burkey shows readers how they can continue to enjoy youthful living, regardless of whether their hearing abilities are undiminished or severely compromised. In a reassuring and straightforward style, Burkey explains the typical causes of hearing loss, from genetic factors to years of exposure to loud noises, and demystifies the sometimes confusing results of a hearing test. Fortunately, new technologies and advances in medicine have made it easier to detect signs of initial hearing loss and to prevent it from becoming a serious problem.

For those who have already sustained some damage, the author suggests ways to manage daily activities by using a range of techniques, equipment, and medical procedures. His suggestions include minor changes, such as using a vibrating alarm clock rather than one that is sound-based. More dramatic but often highly effective options, including reconstructive surgery, cochlear implants, and bone-anchored hearing aids, are also described. 

In his previous award-winning book, Overcoming Hearing Aid Fears: The Road to Better Hearing, Burkey addressed common fears, concerns, and misconceptions that people have about choosing and using hearing aids. In this second indispensable volume, he offers a comprehensive guide on how to cope with and prevent hearing impairment. For a generation that refuses to slow down or quietly accept limitations, this book is essential reading.

[more]

Living with Hearing Loss
Marcia B. Dugan
Gallaudet University Press, 2003
People who are hard of hearing and their friends and relatives now can learn all they need to know about hearing loss in this easy to read guide. Newly updated and revised, Living with Hearing Loss takes the reader from A to Z on the kinds and causes of hearing loss and its common early signs. Written by Marcia B. Dugan, past president of Self Help for Hard of Hearing People (SHHH), this straightforward book provides thorough information on seeking professional evaluations and complete descriptions of hearing aids and other assistive technologies. Enhanced sections on the potential of cochlear implants and dealing with tinnitus distinguishes this very useful handbook. Readers also can take advantage of updated information on relevant Internet sites and a new list of resources on dealing with hearing loss.

       Living with Hearing Loss also suggests strategies for everyday situations and times of emergency. Chapters on speechreading, oral interpreters, assertive communication, and other tips for improving communication can enable people with hearing loss to make changes at work, home, and while traveling to cope with most situations. It can raise significantly the quality of the lives of hard of hearing people while also helping them to avoid dependency upon others.
[more]

Communication Therapy
An Integrated Approach to Aural Rehabilitation
Mary June Moseley
Gallaudet University Press, 1996

This new book for students and professionals emphasizes a functional approach to aural rehabilitation refined during the past several years. It details the use of an integrated therapy strategy designed to meet a variety of needs for each client while simultaneously working on multiple communication skill areas. Particular care has been taken to address the different requirements of deaf and hard of hearing adolescents and adults, including information about the unique needs of the culturally Deaf population. Throughout this practical text, clinicians receive encouragement to learn American Sign Language to enhance communication with Deaf clients.

       Communication Therapy calls upon the expertise of various authorities well-versed in integrated therapy. They explain fully the state-of-the-art practices for all therapy areas, from global areas in communication therapy, to technology for aural rehabilitation, auditory skills, speechreading, speech and voice, pronunciation, and language skills, and telephone communication training. Case studies demonstrate the effectiveness of the integrated approach, making this book a significant advancement in communication therapy.

[more]

Missed Connections
Barbara Stenross
Temple University Press, 1999
"Why doesn't she just open up her ears and listen?" Few physical problems are as poorly understood as hearing loss. In Missed Connections, a new kind of  self-help book that combines sociological reporting with personal reflection, sociologist Barbara Stenross examines what hearing loss feels like to those who have it and which technologies and strategies can improve communication at home and in public.

Based on seven  years of research, Stenross's book tells of how -- as she sought information and solutions to help her hard-of-hearing father -- she came  to join a community group called Village Self Help for Hard of Hearing People. Taking us along to group meetings and into the homes of members, Stenross shows us -- through the personal accounts of these individuals -- the exhaustion that comes from constantly straining to listen, the frustration of missing critical comments or the or the punchlines of jokes, and the pain that hard-of-hearing family members experience when loved ones accuse them of hearing "when they want to." Full of scenes, dialogues, and conversations, Missed Connections also discusses such practical issues as how people with impaired hearing can continues to use the phone, how assistive technologies can help in public and private, why hearing aids can't always do enough, and how bluffing and silence can hurt more than help. Understanding that when one family member is hard of hearing, the whole family can suffer from "missed connections," Stenross offers in this book a useful family resource with a broad range of practical guidance.

With chapters on belonging and acceptance, do's and don'ts in public, lip-reading, hearing aids, and television, Missed Connections will interest a range of readers including deaf and hard-of-hearing people -- as well as their families, teachers, friends, employers, and counselors -- healthcare professionals, scholars, and others interested in the experience of and solutions for disability and hearing loss.
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Hearing Happiness
Deafness Cures in History
Jaipreet Virdi
University of Chicago Press, 2020
Weaving together lyrical history and personal memoir, Virdi powerfully examines society’s—and her own—perception of life as a deaf person in America.

At the age of four, Jaipreet Virdi’s world went silent. A severe case of meningitis left her alive but deaf, suddenly treated differently by everyone. Her deafness downplayed by society and doctors, she struggled to “pass” as hearing for most of her life. Countless cures, treatments, and technologies led to dead ends. Never quite deaf enough for the Deaf community or quite hearing enough for the “normal” majority, Virdi was stuck in aural limbo for years. It wasn’t until her thirties, exasperated by problems with new digital hearing aids, that she began to actively assert her deafness and reexamine society’s—and her own—perception of life as a deaf person in America.
 
Through lyrical history and personal memoir, Hearing Happiness raises pivotal questions about deafness in American society and the endless quest for a cure. Taking us from the 1860s up to the present, Virdi combs archives and museums in order to understand the long history of curious cures: ear trumpets, violet ray apparatuses, vibrating massagers, electrotherapy machines, airplane diving, bloodletting, skull hammering, and many more. Hundreds of procedures and products have promised grand miracles but always failed to deliver a universal cure—a harmful legacy that is still present in contemporary biomedicine.

Weaving Virdi’s own experiences together with her exploration into the fascinating history of deafness cures, Hearing Happiness is a powerful story that America needs to hear.
[more]

Missing Words
The Family Handbook on Adult Hearing Loss
Kay Thomsett
Gallaudet University Press, 1993
Written by Eve Nickerson, who is deaf, and her daughter Kay Thomsett, Missing Words lays out the practical steps families can take to adjust to a loved one’s hearing loss. This excellent guidebook shows how the exchange of information can be altered at fundamental levels, what these alterations entail, and how they can affect one’s ability to understand and interpret spoken communication. Along with the hands-on tips provided throughout, this handbook considers the potential of cochlear implants, described both by audiologist Holden and by Nickerson, who underwent implant surgery in 1985. For all families coping with a loved one’s hearing loss, Missing Words is the outstanding single resource upon which they can rely.
[more]

The Handbook of Pediatric Audiology
Sanford Gerber
Gallaudet University Press, 2000
Now available in paperback; ISBN 1-56368-109-9
[more]

Genetics, Disability, and Deafness
John Vickrey Van Cleve
Gallaudet University Press, 2004

Pulitzer Prize-winning author Louis Menand begins this wide-ranging volume with an essay that extols diversity and warns of the dangers of modifying the human genome. Nora Groce reviews the ways that societies have defined disability and creates an interpretive framework for discussing the relationship between culture and disability.

     In essays devoted to historical perspective, Brian H. Greenwald comments upon the real “toll” taken by A. G. Bell’s insistence upon oralism, while Joseph J. Murray weighs the nineteenth-century debate over whether deaf-deaf marriages should be encouraged. John S. Schuchman’s chilling account of deafness and eugenics in the Nazi era adds wrenching reinforcement to the impetus to include disabled people in genetics debates.

     Mark Willis offers an intensely personal reflection on the complexities of genetic alteration, addressing both his heart condition and his blindness in surprisingly different ways. Anna Middleton extends Willis’s concepts in her discussion of couples currently considering the use of genetic knowledge and technology to select for or against a gene that causes deafness.

     In the part on the science of genetics, Orit Dagan, Karen B. Avraham, Kathleen S. Arnos, and Arti Pandya clarify the choices presented by genetic engineering, and geneticist Walter E. Nance emphasizes the importance of science in offering individuals knowledge from which they can fashion their own decisions. In the concluding section, Christopher Krentz raises moral questions about the ever-continuing search for human perfection, and Michael Bérubé argues that disability should be considered democratically to ensure full participation of disabled people in all decisions that might affect them.

[more]

Orchid of the Bayou
A Deaf Woman Faces Blindess
Cathryn Carroll
Gallaudet University Press, 2001

In graduating from Gallaudet University, finding a job in Washington, D.C., and starting a family with her college sweetheart, Kitty Fischer tacitly abandoned the Louisiana Cajun culture that had exposed her to little more than prejudice and misery as a child. Upon discovering that she suffered from Usher syndrome (a genetic condition that causes both deafness and blindness), however, Fischer began an unlikely journey toward reclaiming her heritage. She and Cathryn Carroll tell the story of her heroic struggle and cultural odyssey in Orchid of the Bayou: A Deaf Woman Faces Blindness.

“By this time Mama knew I was ‘not right,’” Fischer says of her early childhood. “She knew the real words for ‘not right,’ too, though she never said those words. I was deaf and dumb.” Initially Fischer’s parents turned to folk healers to try and “cure” their daughter’s deafness, but an aunt’s fortunate discovery of the Louisiana School for the Deaf would rescue Fischer from misunderstanding and introduce her to sign language and Deaf culture. She weathered the school’'s experiments with oralism and soon rose to the top of her class, ultimately leaving Louisiana for the academic promise of Gallaudet.

While in college, Fischer met and married her future husband, Lance, a Jewish Deaf man from Brooklyn, New York, and each landed jobs close to their alma mater. After the birth of their first child, however, Fischer could no longer ignore her increasing tunnel vision. Doctors quickly confirmed that Fischer had Usher syndrome.

While Fischer struggled to come to terms with her condition, the high incidence of Usher syndrome among Cajun people led her to re-examine her cultural roots. “Could I still be me, Catherine Hoffpauir Fischer, had I not been born of a mix that codes for Usher syndrome?” she asks. “To some extent, the history of my people explains the constitution of my genes and the way my life has unfolded.” Today Fischer prospers, enjoying her time with family and friends and celebrating the Deaf, Cajun, Blind, and Jewish cultures that populate her life. Her lively story will resonate with anyone who recognizes the arduous journey toward claiming an identity.

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Overcoming Hearing Aid Fears
The Road to Better Hearing
Burkey, John M.
Rutgers University Press, 2003

Named one of the Best Consumer Health Books by the Library Journal 2003

There are dozens of misconceptions about hearing aids:

  • “They make you look old.”
  •  “They cause ear infections.”
  • “They increase hearing loss.”
  • “I can’t afford one.” 
This misinformation impairs a person’s quality of life by discouraging them from pursuing help. Technological advances have enabled hearing aids to address a greater range of hearing losses, while making them smaller, better designed, and easier to use than those of the past. More people than ever can benefit from a hearing aid, yet of the nearly thirty million people with a hearing impairment, only about 20 percent choose to use one.

In Overcoming Hearing Aid Fears, audiologist John M. Burkey addresses common fears, concerns, and misconceptions about hearing aids to help readers decide whether these devices will prove useful. Using an informal, anecdotal style informed by years of clinical practice, Burkey provides practical information about hearing aid styles, options, and costs. His expertise and experience in caring for more than 50,000 patients will help people with hearing loss address their personal concerns. The book also helps friends and family understand why a loved one might resist getting a hearing aid, and offers tips on counseling. Audiologists will find this text an important educational tool in advising their own patients.

Approximately 10 percent of Americans (and nearly one-third of people age seventy and older) have some degree of hearing loss that, if left untreated, causes frustration, isolation, and depression. A hearing aid is a simple tool to improve careers, relationships, and self-esteem, and to provide independence and security. Overcoming Hearing Aid Fears can help readers take that first step to a better life.
[more]

Coming to My Senses
One Woman's Cochlear Implant Journey
Claire H. Blatchford
Gallaudet University Press, 2014
Deafened at the age of six, Claire Blatchford was educated orally with speech lessons, speechreading, and hearing aids. Though successful both professionally and domestically, at the age of 67 Blatchford decided to undergo a cochlear implantation. In this memoir, she describes in prose and verse living with a cochlear implant for the past three years.
 
     At first, Blatchford feared losing the last of her hearing through the surgical process. Her audiologist explained that her hearing was worsening and that soon she would move from profound deafness into a state called “cosmic deafness.” Blatchford decided upon the surgery in hope of meeting her hearing family on their turf, and of again hearing the wind, rain, rivers, and crickets. After being implanted, however, she realized that amplification and comprehension were two different things: at first, all she heard was a soup of sound, a condition known as being brain deaf.

     Blatchford soon learned, however, that regaining her hearing was a journey of discovery. Gradually, the sound soup gave way to the ability to hear some sentences without speechreading. The sound of her own voice surprised her, and she could hear her grandchildren speak. The thrill of new things heard on one car trip to a friend’s house moved her to “try my first yodel as I pass by your house.” When asked by others if they should receive an implant, she cautions that it is an individual decision that each deaf person must make. For her, it was the right decision.

[more]

The Artificial Ear
Cochlear Implants and the Culture of Deafness
Blume, Stuart
Rutgers University Press, 2009
When it was first developed, the cochlear implant was hailed as a "miracle cure" for deafness. That relatively few deaf adults seemed to want it was puzzling. The technology was then modified for use with deaf children, 90 percent of whom have hearing parents. Then, controversy struck as the Deaf community overwhelmingly protested the use of the device and procedure. For them, the cochlear implant was not viewed in the context of medical progress and advances in the physiology of hearing, but instead represented the historic oppression of deaf people and of sign languages.

Part ethnography and part historical study, The Artificial Ear is based on interviews with researchers who were pivotal in the early development and implementation of the new technology. Through an analysis of the scientific and clinical literature, Stuart Blume reconstructs the history of artificial hearing from its conceptual origins in the 1930s, to the first attempt at cochlear implantation in Paris in the 1950s, and to the widespread clinical application of the "bionic ear" since the 1980s.

[more]

Cochlear Implants in Children
Ethics and Choices
John B. Christiansen
Gallaudet University Press, 2002
Cochlear Implants in Children: Ethics and Choices addresses every facet of the ongoing controversy about implanting cochlear hearing devices in children as young as 12 months old and in some cases, younger. Authors John B. Christiansen and Irene W. Leigh and contributors Jay Lucker and Patricia Elizabeth Spencer analyzed the sensitive issues connected with the procedure by reviewing 439 responses to a survey of parents with children who have cochlear implants. They followed up with interviews of the parents of children who have had a year's experience using their implants, and also the children themselves. Their findings shape the core of this useful and telling study. Cochlear Implants begins with a history of their development and an explanation of how implants convert sound into electric impulses that stimulate the brain. The second section focuses on pediatric implants, starting with the ways parents coped with the discovery that their child was deaf. Parents share how they learned about cochlear implants and how they chose an implant center. They also detail their children's experiences with the implants after surgery, and their progress with language acquisition and in school. The final part treats the controversy associated with cochlear implants, particularly the reaction of the Deaf community and the ethics of implanting young children without their consent. Cochlear Implants concludes with sage observations and recommendations for parents and professionals that complete it as the essential book on the pros and cons of this burgeoning technology. John B. Christiansen is Professor of Sociology at Gallaudet University. Irene W. Leigh is Professor of Psychology at Gallaudet University.
[more]

The Parents' Guide to Cochlear Implants
Patricia M. Chute
Gallaudet University Press, 2002
Now, parents of deaf children have at hand a complete guide to the process of cochlear implantation. Written by two eminent professionals in deaf education, The Parents' Guide to Cochlear Implants explains in a friendly, easy-to-follow style each stage of the process. Parents will discover how to have their child evaluated to determine her or his suitability for an implant. They'll learn about implant device options, how to choose an implant center, and every detail of the surgical procedure. The initial "switch-on" is described along with counseling about device maintenance. Most importantly, parents will learn their roles in helping their child adjust to and successfully use the cochlear implant. The Parents' Guide to Cochlear Implants emphasizes such critical subjects as learning to listen through home activities, implants as tools for language development, and critical issues regarding school placement. This encouraging book considers the implications for performance in light of the whole child, including issues related to Deaf culture and cochlear implants. The authors also include brief stories by parents whose children have had implants that provide reassuring actual experiences to parents considering the procedure for their own child. With a last word on parenting perspectives and a rich source of resources in the appendices, this one-of-a-kind guide will arm parents of deaf children with complete confidence to make informed decisions about cochlear implantation. Patricia M. Chute is Associate Professor in the Department of Communication Disorders at Mercy College, Dobbs Ferry, NY. Mary Ellen Nevins is Professor in the Department of Communication Disorders and Deafness at Kean University, Union, New Jersey.
[more]

Cochlear Implants
Evolving Perspectives
Raylene Paludneviciene
Gallaudet University Press, 2011

The cochlear implant debate has changed, as evidenced in this cogent collection that presents 13 chapters by 20 experts, including several who communicate through sign language but also utilize cochlear implants. The impetus for this change stems from recognition that both visual and aural input can enhance the education of deaf children.

Divided into four sections, Cochlear Implants: Evolving Perspectives first focuses on the impact of implants in the Deaf community. Chapters in this section examine the issues driving the cochlear implant debate, the ethics of genetic engineering, experiences of implanted adult deaf signers, reflections of deaf mothers who have had their children implanted, and the effects of implants on deaf identity. The second section delves into the mechanics of bimodal processing, including listening strategies that can benefit signing children with cochlear implants. The third section surveys combined aural/visual educational approaches, such as teaching implanted children in an ASL/English bilingual classroom, and applying auditory rehabilitation to a signed communication context.

The final section challenges readers to reframe the debate first by exploring sensory politics, then by envisioning an emerging world that requires the Deaf community to connect with it to secure its future. With this information, readers will reach their own conclusions about cochlear implants and auditory and visual approaches to the mastery of both spoken and signed languages.

[more]

Surgical Consent
Bioethics and Cochlear Implantation
Linda Komesaroff
Gallaudet University Press, 2007

With the rate of cochlear implantation reaching 80% to 90% of all deaf children, some as young as five months old, Surgical Consent: Bioethics and Cochlear Implantation arrives at a critical juncture. This comprehensive collection features essays by Priscilla Alderson, Inger Lise Skog Hansen, Hilde Haualand, volume editor Linda Komesaroff, Paddy Ladd, Harlan Lane, Karen Lloyd, Eithne Mills, Paal Richard Peterson, Gunilla Preisler, Kristina Svartholm, and Michael Uniacke. These worldwide renowned ethicists, educators, and Deaf leaders express their diverse perspectives on the bioethics of childhood cochlear implantation according to their discipline and a number of themes of inquiry: human rights, medical and social ethics, psychology, education, globalization, identity, life pathways, democracy, media, law, and biotechnology.

Drawing on current research, this volume presents the varying reactions around the globe to the high rate of implantation. These views contrast sharply with the medical perspective of deafness overwhelmingly promoted through the media and by the cochlear implantation industry. At the same time, the contributors aim to disrupt the binaries that have long dominated the field of deafness — speech versus sign, instruction through speech and sign systems versus bilingual education, and medical intervention versus cultural membership in the Deaf community.

Surgical Consent begins and ends with the voices of Deaf people. Their articulate and, at times, raw insights clearly delineate the issues of power, positioning, and minority-majority group relations that are inherent in the dominant hearing culture’s understanding of diversity and globalization.

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A Mother’s Manual for the Women of Ferrara
A Fifteenth-Century Guide to Pregnancy and Pediatrics
Michele Savonarola
Iter Press, 2022
The first treatise of its kind to be written in a European vernacular.

Around 1460, Michele Savonarola produced the extraordinary Mother’s Manual for the Women of Ferrara, a gynecological, obstetrical, and pediatric treatise composed in the vernacular so that it could be read not only by the learned but also by pregnant and nursing mothers and the midwives and wet nurses who presided over childbirth. Savonarola’s work is not merely a trivial set of instructions, but the work of a learned scholar who drew on, among others, the ancient Greek physicians Hippocrates and Galen, and Avicenna’s Canon of Medicine. The first of its kind, Savonarola’s Mother’s Manual helps readers understand both the development of late-medieval and early-modern obstetrics and gynecology, as well as the experiences of women who turn to advice books for help with reproductive issues. This book also provides a key to understanding why and how a new genre of book—the midwifery manual or advice book for pregnant women—arose in sixteenth-century Italy and eventually became a popular genre all over Europe from the early modern period to the present day. 
 
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Tell the Driver
A Biography of Elinor F.E. Black, MD
Julie Vandervoort
University of Manitoba Press, 1992

The Love Surgeon
A Story of Trust, Harm, and the Limits of Medical Regulation
Sarah B. Rodriguez
Rutgers University Press, 2020
Dr. James Burt believed women’s bodies were broken, and only he could fix them. In the 1950s, this Ohio OB-GYN developed what he called “love surgery,” a unique procedure he maintained enhanced the sexual responses of a new mother, transforming her into “a horny little house mouse.” Burt did so without first getting the consent of his patients. Yet he was allowed to practice for over thirty years, mutilating hundreds of women in the process.

It would be easy to dismiss Dr. Burt as a monstrous aberration, a modern-day Dr. Frankenstein. Yet as medical historian Sarah Rodriguez reveals, that’s not the whole story. The Love Surgeon asks tough questions about Burt’s heinous acts and what they reveal about the failures of the medical establishment: How was he able to perform an untested surgical procedure? Why wasn’t he obliged to get informed consent from his patients? And why did it take his peers so long to take action?

The Love Surgeon is both a medical horror story and a cautionary tale about the limits of professional self-regulation.
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