The Origins of Bioethics: Remembering When Medicine Went Wrong
by John A. Lynch
Michigan State University Press, 2019 eISBN: 978-1-60917-617-4 | Paper: 978-1-61186-341-3 Library of Congress Classification R853.H8L96 2019 Dewey Decimal Classification 174.28
ABOUT THIS BOOK | AUTHOR BIOGRAPHY | REVIEWS | TOC | REQUEST ACCESSIBLE FILE
ABOUT THIS BOOK
The Origins of Bioethics argues that what we remember from the history of medicine and how we remember it are consequential for the identities of doctors, researchers, and patients in the present day. Remembering when medicine went wrong calls people to account for the injustices inflicted on vulnerable communities across the twentieth century in the name of medicine, but the very groups empowered to create memorials to these events often have a vested interest in minimizing their culpability for them. Sometimes these groups bury this past and forget events when medical research harmed those it was supposed to help. The call to bioethical memory then conflicts with a desire for “minimal remembrance” on the part of institutions and governments. The Origins of Bioethics charts this tension between bioethical memory and minimal remembrance across three cases—the Tuskegee Syphilis Study, the Willowbrook Hepatitis Study, and the Cincinnati Whole Body Radiation Study—that highlight the shift from robust bioethical memory to minimal remembrance to forgetting.
AUTHOR BIOGRAPHY
John A. Lynch is Professor and Graduate Director in the Department of Communication at the University of Cincinnati. He was previously the clinical research ethicist at the Center for Clinical and Translational Science and Training at UC’s College of Medicine. He is the author of What Are Stem Cells? Definitions at the Intersection of Science and Politics, which received the 2016 Distinguished Book Award from the National Communication Association’s Health Communication Division, and “‘Prepare to Believe’: The Creation Museum as Embodied Conversion Narrative,” which received the Association for the Rhetoric of Science, Technology, and Medicine’s 2014 Article of the Year Award.
REVIEWS
"This is a remarkable and engaging book. John A. Lynch is a master at using scholarship in communication and rhetoric to shine a light on bioethics topics and issues. This book is a perfect demonstration of that strategy. Written in clear and engaging prose, it invites readers to reflect on the conflicting interests that continue to shape how stories of research misconduct are told and memorialized. Bioethicists will especially appreciate Lynch’s invitation to reexamine the role bioethicists play in keeping these stories alive in public memory."
—Kyle Brothers, Endowed Chair in Pediatric Clinical and Translational Research, University of Louisville School of Medicine
"Working across apparently disparate terrain of medical rhetoric and rhetorical studies of memory places, John A. Lynch makes a powerful argument that memory undergirds contemporary public debates about bioethics. Lynch carefully theorizes public feelings like disgust, anger, and the uncanny while tracing useful distinctions between minimal memory and forgetting. The heart of the book is his compelling critical assessments of memory practices regarding moments when “'medicine went wrong.'”
—Greg Dickinson, Professor and Chair, Department of Communication Studies, Colorado State University, and author of Suburban Dreams: Imagining and Building the Good Life
"The Origins of Bioethics offers original contributions to both humanistic studies of medical science and interdisciplinary studies of public memory—an impressive scholarly feat indeed. The author’s depth of research, dexterous analyses, and learned insights ensure that this book will appeal to a variety of readers both within rhetorical studies and across related disciplines."
—Bradford Vivian, Professor of Communication Arts and Sciences, Pennsylvania State University, and author of Commonplace Witnessing: Rhetorical Invention, Historical Remembrance, and Public Culture
TABLE OF CONTENTS
Contents
Acknowledgments
Introduction
Part 1. Theory and History of Bioethical Memory
Chapter 1. Bioethical Memory and Minimal Remembrance
Chapter 2. Experiment or Treatment? Histories of Medical Care, Research, and Regulation
Part 2. Cases of Bioethical Memory and Minimal Remembrance
Chapter 3. Lawsuits and Legacies: Competing Memorializations of the Tuskegee Syphilis Study
Chapter 4. Minimal Remembrance and the Obligation to Remember: Official and Vernacular Memories of the Willowbrook State School
Chapter 5. Attempting to Forget: The University of Cincinnati Radiation Studies
Conclusion
Notes
References
Index
REQUEST ACCESSIBLE FILE
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The Origins of Bioethics: Remembering When Medicine Went Wrong
by John A. Lynch
Michigan State University Press, 2019 eISBN: 978-1-60917-617-4 Paper: 978-1-61186-341-3
The Origins of Bioethics argues that what we remember from the history of medicine and how we remember it are consequential for the identities of doctors, researchers, and patients in the present day. Remembering when medicine went wrong calls people to account for the injustices inflicted on vulnerable communities across the twentieth century in the name of medicine, but the very groups empowered to create memorials to these events often have a vested interest in minimizing their culpability for them. Sometimes these groups bury this past and forget events when medical research harmed those it was supposed to help. The call to bioethical memory then conflicts with a desire for “minimal remembrance” on the part of institutions and governments. The Origins of Bioethics charts this tension between bioethical memory and minimal remembrance across three cases—the Tuskegee Syphilis Study, the Willowbrook Hepatitis Study, and the Cincinnati Whole Body Radiation Study—that highlight the shift from robust bioethical memory to minimal remembrance to forgetting.
AUTHOR BIOGRAPHY
John A. Lynch is Professor and Graduate Director in the Department of Communication at the University of Cincinnati. He was previously the clinical research ethicist at the Center for Clinical and Translational Science and Training at UC’s College of Medicine. He is the author of What Are Stem Cells? Definitions at the Intersection of Science and Politics, which received the 2016 Distinguished Book Award from the National Communication Association’s Health Communication Division, and “‘Prepare to Believe’: The Creation Museum as Embodied Conversion Narrative,” which received the Association for the Rhetoric of Science, Technology, and Medicine’s 2014 Article of the Year Award.
REVIEWS
"This is a remarkable and engaging book. John A. Lynch is a master at using scholarship in communication and rhetoric to shine a light on bioethics topics and issues. This book is a perfect demonstration of that strategy. Written in clear and engaging prose, it invites readers to reflect on the conflicting interests that continue to shape how stories of research misconduct are told and memorialized. Bioethicists will especially appreciate Lynch’s invitation to reexamine the role bioethicists play in keeping these stories alive in public memory."
—Kyle Brothers, Endowed Chair in Pediatric Clinical and Translational Research, University of Louisville School of Medicine
"Working across apparently disparate terrain of medical rhetoric and rhetorical studies of memory places, John A. Lynch makes a powerful argument that memory undergirds contemporary public debates about bioethics. Lynch carefully theorizes public feelings like disgust, anger, and the uncanny while tracing useful distinctions between minimal memory and forgetting. The heart of the book is his compelling critical assessments of memory practices regarding moments when “'medicine went wrong.'”
—Greg Dickinson, Professor and Chair, Department of Communication Studies, Colorado State University, and author of Suburban Dreams: Imagining and Building the Good Life
"The Origins of Bioethics offers original contributions to both humanistic studies of medical science and interdisciplinary studies of public memory—an impressive scholarly feat indeed. The author’s depth of research, dexterous analyses, and learned insights ensure that this book will appeal to a variety of readers both within rhetorical studies and across related disciplines."
—Bradford Vivian, Professor of Communication Arts and Sciences, Pennsylvania State University, and author of Commonplace Witnessing: Rhetorical Invention, Historical Remembrance, and Public Culture
TABLE OF CONTENTS
Contents
Acknowledgments
Introduction
Part 1. Theory and History of Bioethical Memory
Chapter 1. Bioethical Memory and Minimal Remembrance
Chapter 2. Experiment or Treatment? Histories of Medical Care, Research, and Regulation
Part 2. Cases of Bioethical Memory and Minimal Remembrance
Chapter 3. Lawsuits and Legacies: Competing Memorializations of the Tuskegee Syphilis Study
Chapter 4. Minimal Remembrance and the Obligation to Remember: Official and Vernacular Memories of the Willowbrook State School
Chapter 5. Attempting to Forget: The University of Cincinnati Radiation Studies
Conclusion
Notes
References
Index
REQUEST ACCESSIBLE FILE
If you are a student who cannot use this book in printed form, BiblioVault may be able to supply you
with an electronic file for alternative access.
Please have the accessibility coordinator at your school fill out this form.
It can take 2-3 weeks for requests to be filled.
ABOUT THIS BOOK | AUTHOR BIOGRAPHY | REVIEWS | TOC | REQUEST ACCESSIBLE FILE